But my reflexes are good ...

[CuriousGirl]

...and i have no pain. i don't know which thread i read (hey, i'm a poet) but it was about als/mnd and NOT having any pain and my reflexes are good and my senses are good. 4 neurologists din't want to confirm diagnosis because of it.

also diabetic 30 years, neuro's and endo dont know if it's partly diabetic neuropathy.after 4+ years, i cant use my left hand much at all now and it's beginning in my right. i have the very first symptom i noticed in my left hand, in my right hand now...not able to open front door because no strength in thumb to press down the latch.

tho off balance a little bit, my lower body is showing no signs.

new neuro tomorrow specializing in als.

[rose]

Good luck with your appointment tomorrow, maybe they will have some answers for you. I think (emphasis on think) that reflex issues are not as noticeable in daily living for those with predominantly lower motor neuron involvement.

[notme]

Reflexes can be normal, hyper or absent or diminished.

Some, with UMN dominant, have hyper reflexes. With LMN, normally diminished and/or absent. There are more reflexes than some even know can be checked. Lots of folks only think of the knee reflexes and the one on the feet for babinski check (UMN issues) there are actually many more, even in the face.

Mine are absent in my hand where the atrophy is--and hyper in the legs where the spasticity is, and weak on the arm that is slowly getting worse. Just all depends.

Has your diagnosed been confirmed?

[buslady]

I was thinking about your diabetes curious girl I have diabetes but very mild..and well control...after I try to share with my PCP for a long time that my toes on my left foot wasn't working...I thought diabetes might be the cause....my PcP sent me to another Ortho type doctor who took a ton of xrays it felt like and said he couldnt' help me I had to see a Neuro doctor...what is weird is they thought it was diabetes but it was then determen by the EMG I didn't have the Diabetic Neuropathy. So I think the EMG's will tell you if your diabetes is what is the cause?
But also told it effects the feet and legs/ I also have things going on with my arms, face, fingers, toes, feet, legs, etc. But not yet diagoze with ALS.
I have numbing of both legs, feet, toes I can't move any more...and my hands and arms...also up to my bellie button I can and had strange numbness and lately getting worse with ped. of not able to walk....I can walk but I fall a lot. On my last vist with my Neuro doctor he said I can't fall any more and order me a scooter...I have trouble controling those single (sorry forgot what they are call stem like things you move the elec chair with) on the chairs...so I can use the scooter with other fingers still...except the scooter we purchase off the internet now has died.
My husband seems to pushes me when it goes out but it got so bad we dont' use it now.
I hope you are able to get diagnose soon.
I also have problems with chewing up my food and swollening (mis spell) I think it was two years when the first time I choke on eating a sandwitch...but kept it to myself...it just has included more food types..I start choking and I try to get help but lately I always carry water because of that...also the newest thing happening right now..is my voice is horse it brakes up....but that is brand new...I think it is my copd...by the way I never smoke...and the doctor has done lots of tests and put me on oxygen because of how low I go down without it....
Also I have problems with sleep etc. I suppose to have another sleep study waiting to see if approve yet...have you had one of those?
I have a C-pat...but afarid of it because of the fact I got Plursey (mis spell) twice last year....so I told the nurse in the hospital I will try again.
they all want me to try I think my Plumb doctor wants to test me for By Pat now.
I am waiting to get another insurance and see if the doctors I need to see like Dr Levie (mis spell) or one of his counter parts in Phx will see me...they have gotten all my records and tests....they made a apt in 3 months...the nurse said they can help me...I hope so.
maybe give me what is wrong with me better idea. hopely.
I wish you luck and everything you might need as well......
I do have muscle weakness, and the leg cramps and arm cramps can be very hurful espeically after they are pass for a while they come back sometimes worse and sometimes they don't leave me...but they are worse then all of it...
I can't tell you what they are I have never been told...but I am gettng worse...