My name is Michael, and I also have ALS, it sure isn't an easy thing to deal with and I don't believe there's any thing anybody could say or do that will set your mind at ease. I can honestly tell you this though: I have never been happier in my life.
[And you can have this too] This wasn't always the case for me. Early on in my diagnosis I didn't know where to turn and didn't want my family to watch my demise. I am not a suicidal person but I did think of just about every which way possible to end my life. I am a Christian, but this battle within me was raging, I was in turmoil. I knew God was in control of everything, that is everything but this. I was not relying on what I already knew to be true. I called out to my Lord Jesus Christ and asked him to help me, I asked him to take this pain from my heart. And He did, I can't explain it in any other way. But I can tell you this is true and He is true and faithful. He will do this for you as well, He will bring you peace even though what you're going through may seem unbearable or hopeless. None of us have the ability to change anything, but our lives here do have meaning. Please ask God to help you, and turn your life over to him, all things are possible through him. Life itself is terminal Clark, and none of us will make it out alive, you and I have been given a great gift, there are many people out there who think tomorrow will come in have no concept of mortality, life is short, please make yours count. You and your family are in our prayers. Michael
Here are a couple of links and I would love to help you in any way I can.
(2 links removed because of promotion/sales) http://www.desiringgod.org/ResourceL...ste_Your_Life/