glupavomomiche
Distinguished member
- Joined
- Sep 25, 2011
- Messages
- 282
- Reason
- PALS
- Diagnosis
- 09/2011
- Country
- US
- State
- Texas
- City
- Podunk
I saw a pulmonologist last month and he started me on a lot of new meds to try to keep the asthma better under control so we'll have an easier time identifying breathing problems related to ALS. Once I started on those, the crud in my lungs has turned loose like crazy! I let my neuro know and she ordered a Cough Assist. It was delivered last week and I have been using it faithfully, twice a day. I see that it does help some, especially now that I've used it a bit and tweeked the settings to get the best possible result. HOWEVER... still hard getting this crud up.
The RT who delivered my cough assist actually mentioned that he feels the vest is more beneficial in ALS than just a cough assist. I'm wondering, does the vest really do a better job?
I know there is a clinical trial at my clinic (I'm not eligible for it due to living so far from the clinic) and they are trying folks on just cough assist, just the vest, and another group doing both. Are any of you in this trial? Anyone (trial or not) who use both? Thoughts?
Your input is appreciated and thanks for taking time to answer!
The RT who delivered my cough assist actually mentioned that he feels the vest is more beneficial in ALS than just a cough assist. I'm wondering, does the vest really do a better job?
I know there is a clinical trial at my clinic (I'm not eligible for it due to living so far from the clinic) and they are trying folks on just cough assist, just the vest, and another group doing both. Are any of you in this trial? Anyone (trial or not) who use both? Thoughts?
Your input is appreciated and thanks for taking time to answer!