Filmmaker
Active member
- Joined
- Nov 24, 2011
- Messages
- 76
- Reason
- PALS
- Country
- CA
- State
- Québec
- City
- Montreal
Hi everyone
Since I have been sick I have been dealing on and off with some unbearable "bone pain", at least it feels so, I guess it's muscle pain but really painful... and I don't see many people here complaining about that... Am I the only one?
Although I must say I have it less and less, it has been replaced y more and more weakness...
Also, since I have been weak enough to not even be able to stand on my feet, I have this weird feeling as if my limbs are not there, not part of me anymore, do you get that too? It's very surreal, and still I can move them if I really need to...
Last question, has anybody noticed more black spots on your skin, on places where there is atrophy? I think I have more and more of these spots, especially on my feet, is that part of ALS or is it another problem that my wonderful body has to deal with?
Thanks a lot for reading!
Since I have been sick I have been dealing on and off with some unbearable "bone pain", at least it feels so, I guess it's muscle pain but really painful... and I don't see many people here complaining about that... Am I the only one?
Although I must say I have it less and less, it has been replaced y more and more weakness...
Also, since I have been weak enough to not even be able to stand on my feet, I have this weird feeling as if my limbs are not there, not part of me anymore, do you get that too? It's very surreal, and still I can move them if I really need to...
Last question, has anybody noticed more black spots on your skin, on places where there is atrophy? I think I have more and more of these spots, especially on my feet, is that part of ALS or is it another problem that my wonderful body has to deal with?
Thanks a lot for reading!