scottishmum
New member
- Joined
- Mar 18, 2012
- Messages
- 9
- Reason
- PALS
- Diagnosis
- 03/2012
- Country
- UK
- State
- scotland
- City
- glasgow
after visiting my neuro in march he said that due to previous ncv and emg test results and my progression over the last 4 years he was sure it was Motor Neuron Disease.
after explaining all the types he then said in his opinion he thought i had ALS but was going to do a further nerve conduction on my arms (which have always tested clear even though the twitches and cramping are in both arms) as he was looking for upper neuron damage as all previous tests had only shown lower neuron damage and denervation on my legs .
anyway had this test where the held a ring against my head and measured the conduction speed into my hands have to say was very weird feeling , they did say they dont do this type of test very often.
the letter arrived today and says " Your recent tests to look at the connectivity of the nervous system have not shown delays in conduction, suggesting from the electrical perspective on these tests , no abnormality with the connectivity . you will be kept under review in my clinic.
tried phoning his secretary but she is on holiday till next week , any input would be greatly appreciated
thanks
after explaining all the types he then said in his opinion he thought i had ALS but was going to do a further nerve conduction on my arms (which have always tested clear even though the twitches and cramping are in both arms) as he was looking for upper neuron damage as all previous tests had only shown lower neuron damage and denervation on my legs .
anyway had this test where the held a ring against my head and measured the conduction speed into my hands have to say was very weird feeling , they did say they dont do this type of test very often.
the letter arrived today and says " Your recent tests to look at the connectivity of the nervous system have not shown delays in conduction, suggesting from the electrical perspective on these tests , no abnormality with the connectivity . you will be kept under review in my clinic.
tried phoning his secretary but she is on holiday till next week , any input would be greatly appreciated
thanks