Jeanieee
New member
- Joined
- Mar 28, 2012
- Messages
- 6
- Reason
- PALS
- Diagnosis
- 03/2012
- Country
- US
- State
- California
- City
- Long Beach
Hi all,
It has been a little over a week since my diagnosis and this is my first post. my symptoms seem to progress on a daily basis. I have been essentially bed bound in my condo with a livein caretaker for a few months. I have a 90 year old, healthy mom nearby and a son, daughter in law and grandson 60 miles away, with new baby coming in october. I can no longer do my grapic design work, many friends have drifted away and i don't get the chance to do active grandmothering. and my options for when, where and how to live are causing me great distress as I struggle to keep ahead of my rapidly changing needs. I will ask more about that on a separate post. I can walk a little, use my hands and talk at present. But I seem to have lost my sense of purpose and seem not to be able to let the love I do have in. Unfortunately I do not have organized religion to fall back on.
Sorry to be so negative, but I could use a dose of experienced wisdom. For those of you who have gone before me, how did your cycle of emotions evolve after diagnosis. I feel locked into hopelessness but hear it eventually gives way to acceptance and peace. are there specific steps you took, tools, books you read, etc.
Thanks,
Jeanie
It has been a little over a week since my diagnosis and this is my first post. my symptoms seem to progress on a daily basis. I have been essentially bed bound in my condo with a livein caretaker for a few months. I have a 90 year old, healthy mom nearby and a son, daughter in law and grandson 60 miles away, with new baby coming in october. I can no longer do my grapic design work, many friends have drifted away and i don't get the chance to do active grandmothering. and my options for when, where and how to live are causing me great distress as I struggle to keep ahead of my rapidly changing needs. I will ask more about that on a separate post. I can walk a little, use my hands and talk at present. But I seem to have lost my sense of purpose and seem not to be able to let the love I do have in. Unfortunately I do not have organized religion to fall back on.
Sorry to be so negative, but I could use a dose of experienced wisdom. For those of you who have gone before me, how did your cycle of emotions evolve after diagnosis. I feel locked into hopelessness but hear it eventually gives way to acceptance and peace. are there specific steps you took, tools, books you read, etc.
Thanks,
Jeanie