hey all, im new to this forum and just have popped by for help, advice or opinion
My mom has been diagnosed with ALS approximately a year ago, prior to that she had many symptoms but we assumed it was from a stroke she apparently suffered month's before that, anyways health care where we are from is not the greatest to say the least as she met with several doctors and neuro surgeons but to no avail until we drove 2 hours away to meet with the ALS team of London where she was diagnosed well long story short it seems her condition is getting worse however unlike most ALS sufferers her symptoms have began and remain in her throat area with first losing speech then the ability to eat (feeding tube installed) now the bouts of choking are becoming increasingly worse, she seemed to have her strength to her limbs but recently suffered a fall, UGH
ok so I guess what I am asking is has anyone else experienced ALS to the throat area exclusive b/c it was to my understanding that that was the final destination the disease hits
also as my mom is 80 and still has her wits about her we have met with Hospice and they recently asked if our mom suffers a severe choking spell do we want her resucitated?
me and my sisters have been chewing on this as how can we say no but we have no idea of her suffering and what day to day is like in her shoes
Thanks
My mom has been diagnosed with ALS approximately a year ago, prior to that she had many symptoms but we assumed it was from a stroke she apparently suffered month's before that, anyways health care where we are from is not the greatest to say the least as she met with several doctors and neuro surgeons but to no avail until we drove 2 hours away to meet with the ALS team of London where she was diagnosed well long story short it seems her condition is getting worse however unlike most ALS sufferers her symptoms have began and remain in her throat area with first losing speech then the ability to eat (feeding tube installed) now the bouts of choking are becoming increasingly worse, she seemed to have her strength to her limbs but recently suffered a fall, UGH
ok so I guess what I am asking is has anyone else experienced ALS to the throat area exclusive b/c it was to my understanding that that was the final destination the disease hits
also as my mom is 80 and still has her wits about her we have met with Hospice and they recently asked if our mom suffers a severe choking spell do we want her resucitated?
me and my sisters have been chewing on this as how can we say no but we have no idea of her suffering and what day to day is like in her shoes
Thanks