markt2495
Member
- Joined
- Nov 27, 2011
- Messages
- 22
- Reason
- PALS
- Diagnosis
- 03/2012
- Country
- UK
- State
- england
- City
- liverpool
After 18 months of progressive weakness, curling of the hand, atrophy and facsiculations I have now been diagnosed with ALS, the worst part about it was the fact that I was so worried months ago and my neuro said it was mmn and was giving me ivig. I thought I was going for a simple check up and BAM. I have developed swallowing problems brisk reflexes now which is why he's definate. I was told to come back in two months and take riluzole, is that it? Is there anything else I should be doing? I feel so lost I sit here doubting his diagnostic skills and thinking of ways to beat it with vitamins etc. any advice on how to cope or just a hello would be of comfort.
Mark
Liverpool England
Mark
Liverpool England