ALSFORUMS.COM   - ALS/MND Support Group   - Fibromyalgia Support Group   - PLS Support Group   - PBP Support Group   - PMA Support Group   -  
Old 02-19-2012, 09:35 AM   #1 (permalink)
Member
Registered Member
 
CGAR's Avatar
Join Date: 2011
City: ST. CATHARINES
State: ON
Country: Can
Diagnosed: 10/2011
Posts: 121
CGAR is on a distinguished road
Default Why is sleeping so much worse?

Hi guys,
Mostly my right arm & hand are affected usually , but at night when I'm laying down, both arms and hands are terrible.
Both hands / arms are stiff, enough I can't really pull the covers over me when I roll over without throwing the hip into it..

Once I wake up and start moving again, everything goes back to my new normal of right arm / hand stiffness, and left, slightly weak, but not bad at all.


Scares the crap out of me every night as I think it'll stay that way come morning.

Anyone else experienced this?

Thanks.
Casey

CGAR is offline  
Old 02-19-2012, 10:53 AM   #2 (permalink)
Member
Registered Member
 
SueG's Avatar
Join Date: 2010
City: central
State: ME
Country: US
Diagnosed: 09/2010
Posts: 218
SueG is on a distinguished road
Default Re: Why is sleeping so much worse?

Are you on Baclofen ? I take higher dose at bedtime, low dose daytime, helps.
SueG is offline  
Old 02-19-2012, 12:11 PM   #3 (permalink)
Very Helpful Member
Registered Member
 
Ms. Pie's Avatar
Join Date: 2011
City: Colorado
State: CO
Country: US
Diagnosed: 10/2010
Posts: 1,801
Blog Entries: 2
Ms. Pie is on a distinguished road
Default Re: Why is sleeping so much worse?

I do with my calves. It feels like I hiked miles and over did it. It's Spasticity. It just takes a trip to the bathroom to get it stretched out. Do you have a physical Theraoist that can give you range of motion exercises?
Ms. Pie is offline  
Old 02-19-2012, 01:23 PM   #4 (permalink)
Member
Registered Member
 
glupavomomiche's Avatar
Join Date: 2011
City: Podunk
State: Texas
Country: US
Diagnosed: 09/2011
Posts: 271
glupavomomiche is on a distinguished road
Default Re: Why is sleeping so much worse?

That's spasticity for ya. I take Baclofen in the day and Zanaflex at night. The Zanaflex is the big helper for my spasticity (especially in my hands... I don't wake up with my fingernails digging into my palms), but can't stay awake on the stuff, so switch to Baclofen in the day... it does a good job too. Stretching does help a bit. It would probably help more if I had someone to help me do it, but not ready to give up living alone yet.
glupavomomiche is offline  
Old 02-19-2012, 02:33 PM   #5 (permalink)
Member
Registered Member
 
CGAR's Avatar
Join Date: 2011
City: ST. CATHARINES
State: ON
Country: Can
Diagnosed: 10/2011
Posts: 121
CGAR is on a distinguished road
Default Re: Why is sleeping so much worse?

Thanks.
I'm not on anything yet, so maybe i'll check with my script writer to ask his opinion.

Cheers,
Casey
CGAR is offline  
Old 02-19-2012, 02:38 PM   #6 (permalink)
Very Helpful Member
Registered Member
 
Ms. Pie's Avatar
Join Date: 2011
City: Colorado
State: CO
Country: US
Diagnosed: 10/2010
Posts: 1,801
Blog Entries: 2
Ms. Pie is on a distinguished road
Default Re: Why is sleeping so much worse?

I'm not either. So far it's managable.

Cheers to you Casey and Gulp!
Ms. Pie is offline  
Closed Thread

Tags
arm, back, hip, night, stiffness


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search


Similar Threads for: Why is sleeping so much worse?
Thread Thread Starter Forum Replies Last Post
My tongue is worse michelleG Do I Have ALS? Is This ALS? 7 02-01-2010 03:11 PM
What's worse than ALS? PDaddy People With ALS - "PALS" 26 10-13-2008 11:43 AM
Some days are worse than others! Gracie General Discussion About PLS 8 06-22-2008 08:15 AM
Just when you think things cant get worse! Gina Current Caregivers (CALS) 13 11-22-2007 06:11 AM
worse then ALS CIARA1 General Discussion About ALS/MND 13 04-25-2006 05:22 PM


    
   
   
   
   
  ALSforums - Get help and support with ALS/MND