Old 02-19-2012, 09:35 AM #1 (permalink)
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Default Why is sleeping so much worse?

Hi guys,
Mostly my right arm & hand are affected usually , but at night when I'm laying down, both arms and hands are terrible.
Both hands / arms are stiff, enough I can't really pull the covers over me when I roll over without throwing the hip into it..

Once I wake up and start moving again, everything goes back to my new normal of right arm / hand stiffness, and left, slightly weak, but not bad at all.


Scares the crap out of me every night as I think it'll stay that way come morning.

Anyone else experienced this?

Thanks.
Casey
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Old 02-19-2012, 10:53 AM #2 (permalink)
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Default Re: Why is sleeping so much worse?

Are you on Baclofen ? I take higher dose at bedtime, low dose daytime, helps.
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Old 02-19-2012, 12:11 PM #3 (permalink)
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Default Re: Why is sleeping so much worse?

I do with my calves. It feels like I hiked miles and over did it. It's Spasticity. It just takes a trip to the bathroom to get it stretched out. Do you have a physical Theraoist that can give you range of motion exercises?
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Old 02-19-2012, 01:23 PM #4 (permalink)
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Default Re: Why is sleeping so much worse?

That's spasticity for ya. I take Baclofen in the day and Zanaflex at night. The Zanaflex is the big helper for my spasticity (especially in my hands... I don't wake up with my fingernails digging into my palms), but can't stay awake on the stuff, so switch to Baclofen in the day... it does a good job too. Stretching does help a bit. It would probably help more if I had someone to help me do it, but not ready to give up living alone yet.
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Old 02-19-2012, 02:33 PM #5 (permalink)
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Default Re: Why is sleeping so much worse?

Thanks.
I'm not on anything yet, so maybe i'll check with my script writer to ask his opinion.

Cheers,
Casey
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Old 02-19-2012, 02:38 PM #6 (permalink)
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Default Re: Why is sleeping so much worse?

I'm not either. So far it's managable.

Cheers to you Casey and Gulp!
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