Mestinon

[hjlindley]

All of us PALS know about the debilitating fatigue with this disease. When I was a clinic, Dr. thought this drug would be worth a try. It is normally used for Myesthinia Gravis, but had a low side effect profile and is cheap (generic).

Well, IT WORKED, at least for me. Two days after I started the drug, dear old friend came to town, and we did our large art museum. That was 5 exhibits and lots of walking. A little fatigue, but not much.

Ask your MD, as every situation is different. And maybe this is the placebo effect, but I don't care.

Hope this helps some of you
H:-o

 

[vlcare]

My husband's neuro prescribed this med for him soon after diagnosis (in conjunction with Rilutek). It really helps. I think every PALS should consider giving it a try.

After all, if PALS are clamoring to pressure the pharmaceutical companies to give them access to newer drugs with unknown benefits, what is the harm in trying a safe drug that has possibilities?

Thanks, hjlindley, for the heads up!

VL

 

[vlcare]

My previously reply disappeared. So I will try again.

My husband was prescribed Mestinon not long after diagnosis. He takes it along with Rilutek. It really helps. Every PAL should at least consider trying it. As I previously stated, if people are willing to pressure the drug companies to have access to drugs with unknown benefits, then why not try an existing, safe drug with possibilities.

VL

 

[Al]

Your post went to moderation. Sometimes it takes a while to be checked and approved.

AL.