We were lucky to have good team care and a fast rating decision, but I know you're right: some ALS vets (most?) aren't getting the care they need, deserve, and are entitled to.
Personally, it seems to me that the preponderance of PGW vets getting ALS is most likely due to something the USA was doing in secret. Whether the 1990-91 military ALS pandemic was caused by deliberate experimentation (like Project 212) or accidental exposure (like Agent Orange), either is a travesty that must be corrected.
If the Congress can send billions in aid to Pakistan, then they could certainly appropriate a billion for the VA to treat and support ALS veterans and their families.
Any ideas on how to get this done?