dragonlibra
Active member
- Joined
- Jul 11, 2011
- Messages
- 89
- Diagnosis
- 09/2011
- Country
- US
- State
- PA
- City
- McKeesport
I just got diagnosed though I'm pissed at docs who drug this out in time between appts - asap is 7 weeks! They damn well better get on the ball now getting me in to their ALS clinic. I am going to look at UPMC clinic as well & inquire as to their drug trial
I've been doing some exercises - stretching & thera bands. Any good advice on what to do and not to do. Lost a lot of function strength range right fingers, hand, wrist, shoulder, and drop foot right. Left hand is going somewhat. Should I continue thera bands if I don't strain?
Anything you can point me to? How much walking? I try walking laps of our office halls.
Like I said I'm pissed at these neuros they didn't already have me in to see therapists. My first emg showed signs of als end of May & I had lost a lot of right hand function. Do they tell the patient? NO!
I've been doing some exercises - stretching & thera bands. Any good advice on what to do and not to do. Lost a lot of function strength range right fingers, hand, wrist, shoulder, and drop foot right. Left hand is going somewhat. Should I continue thera bands if I don't strain?
Anything you can point me to? How much walking? I try walking laps of our office halls.
Like I said I'm pissed at these neuros they didn't already have me in to see therapists. My first emg showed signs of als end of May & I had lost a lot of right hand function. Do they tell the patient? NO!