notgivnup
Senior member
- Joined
- Nov 8, 2010
- Messages
- 833
- Reason
- PALS
- Diagnosis
- 11/2010
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- OS
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- Darkside of Moon
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- country
Saw the pulmonologist today. They called yesterday to have me come in for follow up today visit from sleep test almost 4 weeks ago. I thought they could have just told me over the phone as I belived I would have heard sooner if something was wrong. But even they need to make money I guess.
The results were good, I think, at least he thought so and he's the expert. Had a nice talk w/ him....sleep test said no sleep apnea..yeah! And I only stop breathing for a short bit on the average of once an hour, probably why morning headaches. My breathing slows way down he said like breathing thru a straw, probably why I wake up so often to get it going stronger, but see's no collapse of upper airway. So I guess I'm good to go for now. Yeah!
I did ask about the slow and shallow breathing, and if it could be from my diaphram, not working as well as before, he really didn't know. And was not concerned about the stop breathing for a bit now and again. I know he has never had an ALS patient before but I am trusting his expert advise. Spoke of a mouth piece to keep jaw in place to see if it helped not covered my ins, Isaid no..also having tonsils removed could help...I dont have any...lol.. He mentioned Bi-Pap he didnt think I needed it yet.
Was wondering if anyone has experienced this and if it is normal as he said. Just double checking for those with experience here. Looking for some input from the more highly educated PALS on breathing issues while sleeping.
Thanks
The results were good, I think, at least he thought so and he's the expert. Had a nice talk w/ him....sleep test said no sleep apnea..yeah! And I only stop breathing for a short bit on the average of once an hour, probably why morning headaches. My breathing slows way down he said like breathing thru a straw, probably why I wake up so often to get it going stronger, but see's no collapse of upper airway. So I guess I'm good to go for now. Yeah!
I did ask about the slow and shallow breathing, and if it could be from my diaphram, not working as well as before, he really didn't know. And was not concerned about the stop breathing for a bit now and again. I know he has never had an ALS patient before but I am trusting his expert advise. Spoke of a mouth piece to keep jaw in place to see if it helped not covered my ins, Isaid no..also having tonsils removed could help...I dont have any...lol.. He mentioned Bi-Pap he didnt think I needed it yet.
Was wondering if anyone has experienced this and if it is normal as he said. Just double checking for those with experience here. Looking for some input from the more highly educated PALS on breathing issues while sleeping.
Thanks