Children of PALS.....

[jodiodames]

My name is Jodi O'Donnell-Ames and I have three children- all of whom have lost a parent to ALS. I lost my husband Kevin Gerard O'Donnell in 2001 to ALS. I remarried and my husband lost his wife to ALS. He had a six and 8 year old at the time. Because I want to help the children who live with ALS, I am starting a non-profit for children of PALS called Hope Loves Company for patients in the tri-state area (initially) and need feedback. How can I help your children?

My goals are to offer a free kids' day, support group and website (which is now being created) for peer support.

I am just starting and am open to suggestion.

Thank you so much for helping me to help your families!

Jodi

 

[KC2U2]

What an awesome idea! Best wishes! Mine are all grown up, but I'd think a day out would be great for the kids and a nice break for the moms. Some sort of arts project where they can express their feelings might be good.

 

[LizT]

Jodi- I just wanted to commend you for doing this. You are a true angel and must have a huge heart. I thank you for being so very selfless. Very sorry for the losses in your life.

 

[hopingforcure]

I love your idea. I have a teenager, maybe they could help or be involved in some way..

 

[jodiodames]

Thank you for your input. Would he or she be interested in helping? That would be great!

 

[jodiodames]

Wow. Thank you so much! Kind words. ALS makes us stronger and selfless.

My children were 7, 9 and 10 when parent died. There was so little to help them. I am very excited about this endeavor so please let others know. It will be open to children of patients in the tri-state area.

Best wishes.
Jodi

 

[jodiodames]

Art is very therapeutic so yes, good idea! Thanks for your positive feedback!

 

[kelly]

Great Great Idea.,,,we have two boys that are 7 & 9.....have been living with their Daddy having ALS since they were 2 & 4...really looking forward to your site.

 

[hopingforcure]

My guy would be a great role model for the little guys. He is 16 and quite a nice young man..I would love to help, as would my sister...

 

[brooksea]

Tears...How wonderful! Good luck! You are a saint!