Hello
It's horrible for anyone to be diagnosed with this disease. Especially so, in my opinion, for those with young children. First, though--you didn't do this to yourself. You have absolutely nothing to be ashamed of, hon.
Hopefully, you've been in contact with the ALSA. They are an organization that will give you a lot of helpful information. They also have support groups you can join.
At some point, there will be equipment you'll need to get. The ALSA will help you with that. If you haven't done so, apply for disability/medicare. That will help with paying for things you'll need. There is a 5 month waiting period--but at least the help will be there when/if you need it.
As horrid a thought as it is--you'll also want to think about medical directives (living wills) and discuss you wishes with those closest to you.
While it is a horrible diagnosis, there are people that live years with this disease. Do the things you enjoy now while you can do them. Enjoy each day with your family to the fullest.
One thing that you might want to consider doing is some voice recordings--messages in your own voice--while you can.
The ALS clinics are usually multi-disciplinary. They can help with everything from occupational issues to speech to physical therapy.
Ask a lot of questions. I recommend writing things down--or even recording your office visits.
You don't say who diagnosed you---are they sure of the diagnosis? The ALSA recommends a second opinion. A lot of things can mimic ALS.
Allow yourself to feel what you're feeling. It's perfectly normal.
Hugs and prayers are with you.
