kmendsley
Distinguished member
- Joined
- Feb 19, 2010
- Messages
- 434
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- Highland
Well, I had a dr. appt. on Tue after I had some very nice members tell me I should get that 3rd opinion and just forget the insurance part...otherwise I wouldn't have been able to get in so quick! At 23 years old, almost 24...my b-day is in 2 weeks....I have been diagnosed by a 3rd dr. as having ALS.
In some sorts...I have peace of mind...because now I know rather than wondering with the one diagnoses as yes, and one with a no diagnoses...I have a 3rd yes to break the tie...sort to speak. My stats are not great. Unfortunately, for the past 6 months my docs and I have lived in a world of denial that things were progressively getting worse. I can still walk around with some wobbliness, quite a bit of shaking as of late, voice going away(which is quite unfortunate for me..as that has been my job/my life...I am a choir director and music instructor for adults and kids. ) Fine motor skills rapidly detoriating...I also am certified in sign language and finger spelling is no longer possible. And the worst of it is my breathing. My average is 85 percent oxygen saturation...not great by any means....esp. for a singer!;-)
Emotions: sad, angry, denial, frustrated, bargaining, acceptance...it is possible to have all at once...or at least in quick succession of one another...many times a day. Unfortunately I do not have family support., they deal with things by pretending they don't exist....so not much there. I ask humbly from this community that I may find any bit of support, small, big, whatever to help me continue on this journey...until God calls me Home.
In some sorts...I have peace of mind...because now I know rather than wondering with the one diagnoses as yes, and one with a no diagnoses...I have a 3rd yes to break the tie...sort to speak. My stats are not great. Unfortunately, for the past 6 months my docs and I have lived in a world of denial that things were progressively getting worse. I can still walk around with some wobbliness, quite a bit of shaking as of late, voice going away(which is quite unfortunate for me..as that has been my job/my life...I am a choir director and music instructor for adults and kids. ) Fine motor skills rapidly detoriating...I also am certified in sign language and finger spelling is no longer possible. And the worst of it is my breathing. My average is 85 percent oxygen saturation...not great by any means....esp. for a singer!;-)
Emotions: sad, angry, denial, frustrated, bargaining, acceptance...it is possible to have all at once...or at least in quick succession of one another...many times a day. Unfortunately I do not have family support., they deal with things by pretending they don't exist....so not much there. I ask humbly from this community that I may find any bit of support, small, big, whatever to help me continue on this journey...until God calls me Home.