Old 04-10-2011, 02:02 PM #1 (permalink)
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Default Things I've Learned

Without ALS I'd likely never have learned:

- Just about anyone can safely park in a handicap space
- Doctor and dentist offices aren't ready for nonambulatory people
- How expensive wheelchair vans are
- The obscene profit margins on durable medical equipment
- How to eat with my left hand
- That my arms are about six inches too short
- How powerful a force gravity really in
- You cannot easily slide on bare skin
- How uncomfortable lift reclliners really are
- What a palliative care nurse does
- Men get yeast infections
- The name of the sacrum bone
- What a condom catheter is
- Bedbath is a misnomer
- How really wonderful it feels to have water running on your head
- Private parts easily become public parts
- Sleeping on one's side is (was) wonderful
- The truly theraputic value of the human touch
- Who my real friends are

Just sharing......
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Old 04-10-2011, 02:37 PM #2 (permalink)
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Default Re: Things I've Learned

this brought a tear to my eye...
thank you for opening up and sharing that with us.
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Old 04-10-2011, 03:38 PM #3 (permalink)
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Smile Re: Things I've Learned

I agree and would like to add:

I've learned

that it is not good to fall when no one is around to pick you up.
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Old 04-10-2011, 03:51 PM #4 (permalink)
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Default Re: Things I've Learned

I have learned how nice people really are. Especially those you never met. And most of them are sent by God who has my back now that I need him
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Old 04-10-2011, 03:56 PM #5 (permalink)
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I Have learned that friends are more helpful then family
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Old 04-10-2011, 04:35 PM #6 (permalink)
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I have learned that doctor offices do not have enough handicap parking spaces.
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Old 04-10-2011, 04:44 PM #7 (permalink)
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Default Re: Things I've Learned

My best friend is the 85 year old man down the street Mr. Hopper. I always have someone to tell stories about WW2 or his crane operating days 40s and 50s. I go there when I need a laugh.
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Old 04-10-2011, 06:15 PM #8 (permalink)
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Default Re: Things I've Learned

I have learned to turn off the powerchair when there's a hug coming.
To turn off the powerchair when transferring.
To turn off the powerchair before charging it.
And never toss anything over the joystick. The powerchair will not be turned off and will move erratically.
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Old 04-10-2011, 06:50 PM #9 (permalink)
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Default Re: Things I've Learned

how to pee standing up with one hand trying to keep from falling
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Old 04-10-2011, 07:50 PM #10 (permalink)
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Default Re: Things I've Learned

Hey Ann I learned to turn it off for a hug after running over my wife Marias foot.
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Old 04-10-2011, 08:03 PM #11 (permalink)
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Whoa, Steven. Does she still give you hugs? Maybe with a look of panic on her face?
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Old 04-10-2011, 08:06 PM #12 (permalink)
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Shon, you men at least can stand to pee. Assuming you can stand, of course.
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Old 04-10-2011, 09:09 PM #13 (permalink)
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The most important thing ive learned.... Love conquers all
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Old 04-10-2011, 10:00 PM #14 (permalink)
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Default Re: Things I've Learned

Great thread rmstudier!

Without ALS I'd likely never have learned:

- what AFOs are and that they leave funky tan lines
- all the places in the house I can grab on to for balance
- that I miss tying my own shoes
- that I don't miss driving all that much
- that there are alot of amazingly supportive, encouraging and helpful people united by this disease
- that my golf game will never get any better
- that I can ask for help
- that stairs are from the devil
- that with prayer and laughter I can do this

and that this might make a great start for my next blog!
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Old 04-10-2011, 10:11 PM #15 (permalink)
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I learned that God protects drunks, babies AND caregivers.
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