Old 04-06-2011, 06:10 PM #16 (permalink)
abbas child's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is on a very distinguished road
abbas child abbas child is offline
Extremely Helpful Member
abbas child's Avatar
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is on a very distinguished road
Default Re: Sleep Aids ?

Liz, perhaps if you spoke with his doctor, the dose could be increased and your PALS would get the sleep benefit.
abbas child is offline  
Old 04-06-2011, 06:26 PM #17 (permalink)
LizT's Avatar
Very Helpful Member
 
Join Date: 2010
City: Beaver Dam
State: WI
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 1,532
LizT is on a distinguished road
LizT LizT is offline
Very Helpful Member
LizT's Avatar
Join Date: 2010
City: Beaver Dam
State: WI
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 1,532
LizT is on a distinguished road
Default Re: Sleep Aids ?

Ann- unfortunately, that is Mom's area and she doesnt like to push meds on him and doesnt like change- hard to explain.
But he has never pushed for it either so she doesnt see a need for it.
If only i could control EVERYTHING... lol
LizT is offline  
Old 04-06-2011, 07:15 PM #18 (permalink)
Ladyinn's Avatar
Member
 
Join Date: 2010
City: Custer
State: South Dakota
Country: US
Diagnosed: 11/2009
Interest: I have been diagnosed with ALS.
Posts: 402
Ladyinn is on a distinguished road
Ladyinn Ladyinn is offline
Member
Ladyinn's Avatar
Join Date: 2010
City: Custer
State: South Dakota
Country: US
Diagnosed: 11/2009
Interest: I have been diagnosed with ALS.
Posts: 402
Ladyinn is on a distinguished road
Smile Re: Sleep Aids ?

I have been on a bi-pap for several weeks and noticed little change in my sleep. Fact is, I was sleeping through the night before the bi-pap with the help of a Lunesta at bedtime. However woke feeling tired, weak and sleepy. The bi-pap reduced the sleepiness in the morning but didn't touch the weakness and tiredness.

After an overnight oximeter test, the pulmonoligist ordered oxygen to be conneccted to the bi-pap. A world of difference! I still take the sleeping pill, but wake feeling like my "old" self - and with less arm and finger weakness. Don't interpret that to mean I move my arms better - just means the one handed typing doesn't wear me out as quickly!

Might be something to those Oxygen Bars I saw in Vegas!
Ladyinn is offline  
Old 04-06-2011, 07:39 PM #19 (permalink)
abbas child's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is on a very distinguished road
abbas child abbas child is offline
Extremely Helpful Member
abbas child's Avatar
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is on a very distinguished road
Default Re: Sleep Aids ?

Okay Diane...I'll bite. What, exactly are "Oxygen Bars"? Food or entertainment, hahaha?

I'm so glad the addition of oxygen to your bi-pap has had such a dramatic effect. Any word on a new hospice?
abbas child is offline  
Old 04-06-2011, 11:06 PM #20 (permalink)
Ladyinn's Avatar
Member
 
Join Date: 2010
City: Custer
State: South Dakota
Country: US
Diagnosed: 11/2009
Interest: I have been diagnosed with ALS.
Posts: 402
Ladyinn is on a distinguished road
Ladyinn Ladyinn is offline
Member
Ladyinn's Avatar
Join Date: 2010
City: Custer
State: South Dakota
Country: US
Diagnosed: 11/2009
Interest: I have been diagnosed with ALS.
Posts: 402
Ladyinn is on a distinguished road
Default Re: Sleep Aids ?

Ann, Oxygen Bars are places that sell snorts of flavored oxygen! Supposedly for energy and unofficially for a legal "high". I didn't try it so don't really know.

No word on a new hospice.

Last edited by Ladyinn : 04-06-2011 at 11:08 PM Reason: add
Ladyinn is offline  
Old 04-07-2011, 09:26 AM #21 (permalink)
Member
 
Join Date: 2010
City: somewhere
State: in the
Country: US
Diagnosed: 06/2011
Interest: Making the most out of life
Posts: 323
momofsixkids60 is on a distinguished road
momofsixkids60 momofsixkids60 is offline
Member
Join Date: 2010
City: somewhere
State: in the
Country: US
Diagnosed: 06/2011
Interest: Making the most out of life
Posts: 323
momofsixkids60 is on a distinguished road
Default Re: Sleep Aids ?

Okay; Ladies, I have been on the Ambien for a week now. Have not noticed much of an improvement on sleeping, but one strange thing happened....I texted my daughter Lindsay twice. One was blank, the other said something about hearing something fall and not knowing what made the noise. I don't remember texting nor do I remember something falling and making a noise. All this happened at 1:00 in the am. Anyone experience this while on Ambien?
momofsixkids60 is offline  
Old 04-07-2011, 09:39 AM #22 (permalink)
LizT's Avatar
Very Helpful Member
 
Join Date: 2010
City: Beaver Dam
State: WI
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 1,532
LizT is on a distinguished road
LizT LizT is offline
Very Helpful Member
LizT's Avatar
Join Date: 2010
City: Beaver Dam
State: WI
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 1,532
LizT is on a distinguished road
Default Re: Sleep Aids ?

i havent personally, kim, but have heard of this. this can happen with sleep aides and other medications. some folks go as far as "sleep driving" and "sleep eating". mention it to your doc.
LizT is offline  
Old 04-07-2011, 10:27 AM #23 (permalink)
abbas child's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is on a very distinguished road
abbas child abbas child is offline
Extremely Helpful Member
abbas child's Avatar
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is on a very distinguished road
Default Re: Sleep Aids ?

It's been in the national news, Kim. Not you, lol, but the Ambien problem of "sleep walking" in the extreme. I think if it has that effect on you you need to change to a different sleep aid.
abbas child is offline  
Old 04-07-2011, 10:43 AM #24 (permalink)
Member
 
Join Date: 2010
City: somewhere
State: in the
Country: US
Diagnosed: 06/2011
Interest: Making the most out of life
Posts: 323
momofsixkids60 is on a distinguished road
momofsixkids60 momofsixkids60 is offline
Member
Join Date: 2010
City: somewhere
State: in the
Country: US
Diagnosed: 06/2011
Interest: Making the most out of life
Posts: 323
momofsixkids60 is on a distinguished road
Default Re: Sleep Aids ?

OMG, please not sleep eating! I look too good to gain weight (lol). I haven't kept up with the med news lately.
i will make sure I give my keys to somebody at night so I don't find myself out somewhere. Usually, I lood at the side effects, but this time I didn't. I am also on Diamox (along with 3 other meds) but 2 days ago I started with a jerking of both hands every few seconds. It's hard to type and eating HA that's really funny for my kids. Anyone have an extra large bib? Last night I got cantaloupe juice and strawberry juice on my clothes with each bit. And miss my mouth, my kids said, "As big as your mouth is, how come you keep missing it?" I wonder where they heard that from!
momofsixkids60 is offline  
Old 04-07-2011, 01:54 PM #25 (permalink)
hopingforcure's Avatar
Very Helpful Member
 
Join Date: 2008
City: Any
State: USA
Country: US
Diagnosed: 09/2007
Posts: 1,435
hopingforcure is on a distinguished road
hopingforcure hopingforcure is offline
Very Helpful Member
hopingforcure's Avatar
Join Date: 2008
City: Any
State: USA
Country: US
Diagnosed: 09/2007
Posts: 1,435
hopingforcure is on a distinguished road
Default Re: Sleep Aids ?

My husband calls it the AMBIEN Picnic, not that I have ever had one..lol..
hopingforcure is offline  
Old 04-07-2011, 06:56 PM #26 (permalink)
Member
 
Join Date: 2010
City: Benicia
State: California
Country: US
Diagnosed: 03/2010
Interest: I have been diagnosed with ALS.
Posts: 187
Pat Paine is on a distinguished road
Pat Paine Pat Paine is offline
Member
Join Date: 2010
City: Benicia
State: California
Country: US
Diagnosed: 03/2010
Interest: I have been diagnosed with ALS.
Posts: 187
Pat Paine is on a distinguished road
Default Re: Sleep Aids ?

After several tries with drugs and doses,I take two 0.5 mgm of ativan and one 50mgm of trazadone.
Are you on BiPap, breathing issues will also cause havoc, are you short of breath, have you had
your FVC measured lately? I hope something can be found to help.
Blessings,Pat
Pat Paine is offline  
Old 04-08-2011, 12:36 AM #27 (permalink)
Member
 
Join Date: 2010
City: somewhere
State: in the
Country: US
Diagnosed: 06/2011
Interest: Making the most out of life
Posts: 323
momofsixkids60 is on a distinguished road
momofsixkids60 momofsixkids60 is offline
Member
Join Date: 2010
City: somewhere
State: in the
Country: US
Diagnosed: 06/2011
Interest: Making the most out of life
Posts: 323
momofsixkids60 is on a distinguished road
Default Re: Sleep Aids ?

Pat, I am not on anything to sleep other than the Ambien. I am open for suggestions.....I had taken valium during the day and amitriptyline at bedtime. And that seemed to work. Not sure why he took me off. Well maybe when he's back from his 3 week vacation I will talk to him.
momofsixkids60 is offline  
Old 04-08-2011, 10:57 PM #28 (permalink)
LizT's Avatar
Very Helpful Member
 
Join Date: 2010
City: Beaver Dam
State: WI
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 1,532
LizT is on a distinguished road
LizT LizT is offline
Very Helpful Member
LizT's Avatar
Join Date: 2010
City: Beaver Dam
State: WI
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 1,532
LizT is on a distinguished road
Default Re: Sleep Aids ?

couple shots of bourbon... just saying...
LizT is offline  
Old 04-08-2011, 11:17 PM #29 (permalink)
Steven B's Avatar
New Member
 
Join Date: 2011
City: Bellflower
State: California
Country: US
Diagnosed: 04/2011
Interest: I have been diagnosed with ALS.
Posts: 38
Steven B is on a distinguished road
Steven B Steven B is offline
New Member
Steven B's Avatar
Join Date: 2011
City: Bellflower
State: California
Country: US
Diagnosed: 04/2011
Interest: I have been diagnosed with ALS.
Posts: 38
Steven B is on a distinguished road
Default Re: Sleep Aids ?

I seem to be getting better sleep with Advil PM allthough I wake up in the middle of the night to take a leak but I seem to go back to sleep ok but then Ive done that pert near all my life. I do have to sleep with a wedge pillow since about 3 weeks ago and I need my wife to pull me up and my Mother to slide the wedge under me. I wake up at 5:00 am because of the alarm for my wife to get up for work then lay there watching tv till mom wakes up and comes to pull me out of bed to put my feet on the floor then I can slide into my Electric Wheelchair.
I am using the wedge because when I was laying flat on my back I would wake up hour after hour short of breath and a bunch of times I would wake my wife around 2 3 or 4 in the morning and beg her to pull me out of bed and I would try sleeping in my wheelchair with a blanket and a pillow propped against the wall.That all ended when I got my wedge pillow
Steven B is offline  
Old 04-09-2011, 07:59 AM #30 (permalink)
Member
 
Join Date: 2010
City: somewhere
State: in the
Country: US
Diagnosed: 06/2011
Interest: Making the most out of life
Posts: 323
momofsixkids60 is on a distinguished road
momofsixkids60 momofsixkids60 is offline
Member
Join Date: 2010
City: somewhere
State: in the
Country: US
Diagnosed: 06/2011
Interest: Making the most out of life
Posts: 323
momofsixkids60 is on a distinguished road
Default Re: Sleep Aids ?

Liz, I am one who cannot stand the taste of anything with alcohol in it. To me it's like drinking ocean water (beer) or cough syrup (hard liquor). I guess I am just a woose when it comes to drinking (but don't get me wrong, I have thought about it).
Steven, I cannot take any NSAID's (which Advil is one) due to medically induced heart attacks: 1 from Vioxx, the other from Motrin.
And here again, I was up all night again. Thanks for all the input; when my dr. comes back from holiday in Hawaii I will rattle his brain with all the sleep meds you all have tried. Wouldn't you like two have 3 weeks off to "work" 1 week at the neuro conference in Hawaii and another 2 weeks just for yourself. I know I surely would. Plus he works 3 weeks a month and the 4th week is spent seeing patients in the hospital and I don't mean ER patients just in house patients. It must be nice.
momofsixkids60 is offline  
Closed Thread

Tags
hearing, hours, sleep


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Sleep aids jellis86 People With ALS - "PALS" 18 09-12-2013 05:32 PM
natural sleep aids dbach People With ALS - "PALS" 3 09-27-2012 11:48 PM
Amazing Home Health Aids in NY, NY zaro General Discussion About ALS/MND 3 03-23-2012 05:47 PM
Computer Aids Magpuff Other 35 09-05-2011 11:32 AM
Aids als scootermax ALS Research News 3 11-24-2010 12:04 AM
Walking Aids ... not ready for wheelchair yet tande General Discussion About ALS/MND 7 08-27-2010 12:13 AM
Daily Living Aids Question hopeandlove People With ALS - "PALS" 11 01-19-2009 06:50 AM
Lightwriters/ communication aids any info please? DeeMichelle General Discussions About PBP 2 05-08-2008 05:06 PM
Aids Cocktail trial Bugsy General Discussion About ALS/MND 7 03-14-2006 12:41 PM
Lifts, aids, and renovations Snowbird General Discussion About ALS/MND 1 10-14-2005 03:15 PM


All times are GMT -5. The time now is 06:34 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016