Old 03-25-2011, 01:07 PM #1 (permalink)
Chris_b's Avatar
New Member
 
Join Date: 2010
City: St helens
State: merseyside, England
Country: UK
Diagnosed: 07/2010
Interest: I have been diagnosed with ALS.
Posts: 87
Chris_b is on a distinguished road
Chris_b Chris_b is offline
New Member
Chris_b's Avatar
Join Date: 2010
City: St helens
State: merseyside, England
Country: UK
Diagnosed: 07/2010
Interest: I have been diagnosed with ALS.
Posts: 87
Chris_b is on a distinguished road
Default my first attempt at a website about mnd

Ive made a start on a website Fighting My Losing Battle - Homeplease take a look and let me know what you think its very similar to the blog ive been doing but as time goes on i hope to add plenty more things.

Any advice tips etc is more than welcome
Chris_b is offline  
Old 03-26-2011, 11:00 AM #2 (permalink)
abbas child's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is on a very distinguished road
abbas child abbas child is offline
Extremely Helpful Member
abbas child's Avatar
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is on a very distinguished road
Default Re: my first attempt at a website about mnd

Chris, it's wonderful. Love seeing your beautiful daughter, Hollie, by the way. Your blog is perfect, because it's like just sitting down and talking with you--very natural. You and Polly and Hollie (and the dear doggins) will have many good years, I hope with all my heart. Lots more carp fishing, . And Chris, so good your family is united behind you. Thanks for posting your blog link!

Ann
abbas child is offline  
Old 03-26-2011, 12:13 PM #3 (permalink)
AKmom's Avatar
Senior Member
 
Join Date: 2010
City: Wasilla
State: Alaska
Country: US
Diagnosed: 11/2009
Interest: I have been diagnosed with UMND/PLS.
Posts: 631
AKmom is on a distinguished road
AKmom AKmom is offline
Senior Member
AKmom's Avatar
Join Date: 2010
City: Wasilla
State: Alaska
Country: US
Diagnosed: 11/2009
Interest: I have been diagnosed with UMND/PLS.
Posts: 631
AKmom is on a distinguished road
Default Re: my first attempt at a website about mnd

Nice work Chris! Very well done!
AKmom is offline  
Old 03-26-2011, 01:34 PM #4 (permalink)
rcharlton's Avatar
Senior Member
Forum Moderator
 
Join Date: 2005
City: Toronto
State: Ontario
Country: CA
Diagnosed: 11/2005
Interest: I have been diagnosed with ALS.
Posts: 616
rcharlton is on a distinguished road
rcharlton rcharlton is offline
Senior Member
Forum Moderator

rcharlton's Avatar
Join Date: 2005
City: Toronto
State: Ontario
Country: CA
Diagnosed: 11/2005
Interest: I have been diagnosed with ALS.
Posts: 616
rcharlton is on a distinguished road
Default Re: my first attempt at a website about mnd

Like the website - hate the name

Every day we stay alive is a victory

We may lose our ability to walk, hug, speak, eat on our own, breath on our own - but as long as we remain alive we are winning the battle.

The content and spirit of your website seems to be of hope and love. Your title taints and minimizes this spirit.

Don't mean to be harsh - but surviving ALS requires a lot of shifts in perspective and attitude. You appear to have right attitude to weather the storm - so why such a downer of a name?

PS. Love the dog. We have 3 beagles of our own (yes 3!)

Good luck
rcharlton is offline  
Old 03-26-2011, 03:26 PM #5 (permalink)
BarryG's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
BarryG BarryG is offline
Extremely Helpful Member
BarryG's Avatar
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
Default Re: my first attempt at a website about mnd

Great website Chris, keep on writing.
BarryG is offline  
Old 03-26-2011, 03:39 PM #6 (permalink)
Chris_b's Avatar
New Member
 
Join Date: 2010
City: St helens
State: merseyside, England
Country: UK
Diagnosed: 07/2010
Interest: I have been diagnosed with ALS.
Posts: 87
Chris_b is on a distinguished road
Chris_b Chris_b is offline
New Member
Chris_b's Avatar
Join Date: 2010
City: St helens
State: merseyside, England
Country: UK
Diagnosed: 07/2010
Interest: I have been diagnosed with ALS.
Posts: 87
Chris_b is on a distinguished road
Default Re: my first attempt at a website about mnd

Quote:
Originally Posted by rcharlton View Post
Like the website - hate the name

Every day we stay alive is a victory

We may lose our ability to walk, hug, speak, eat on our own, breath on our own - but as long as we remain alive we are winning the battle.

The content and spirit of your website seems to be of hope and love. Your title taints and minimizes this spirit.

Don't mean to be harsh - but surviving ALS requires a lot of shifts in perspective and attitude. You appear to have right attitude to weather the storm - so why such a downer of a name?

PS. Love the dog. We have 3 beagles of our own (yes 3!)

Good luck
Thanks for the comments

I personally like the name, i can see what you mean about us winning every day but to me the end result is we will lose. I focus on the fighting side of it, i will fight it all the way and not give up, it will be a battle, a tough one at that! I will not lose hope as there is always hope of a cure but unfortunatley im not likely to see it.

Wow 3 Beagles! you must be brave lol 1 is hard enough. My wife would love you
Chris_b is offline  
Old 03-27-2011, 12:48 AM #7 (permalink)
Extremely Helpful Member
 
Join Date: 2006
Country: HM
Interest: Other
Posts: 5,205
brooksea is on a very distinguished road
brooksea brooksea is offline
Extremely Helpful Member
Join Date: 2006
Country: HM
Interest: Other
Posts: 5,205
brooksea is on a very distinguished road
Default Re: my first attempt at a website about mnd

Very cool!
brooksea is offline  
Old 03-28-2011, 11:37 AM #8 (permalink)
howerstephanie's Avatar
New Member
 
Join Date: 2010
City: Mechanicsburg
State: PA
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 35
howerstephanie is on a distinguished road
howerstephanie howerstephanie is offline
New Member
howerstephanie's Avatar
Join Date: 2010
City: Mechanicsburg
State: PA
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 35
howerstephanie is on a distinguished road
Default Re: my first attempt at a website about mnd

Chris - What a great website! Very well done. I love the pictures of your family and your dogs. Have a great day
howerstephanie is offline  
Old 03-30-2011, 03:07 PM #9 (permalink)
Member
 
Join Date: 2009
City: Madison
State: Wisconsin
Country: US
Diagnosed: 05/2009
Interest: I have been diagnosed with ALS.
Posts: 162
Madison1943 is on a distinguished road
Madison1943 Madison1943 is offline
Member
Join Date: 2009
City: Madison
State: Wisconsin
Country: US
Diagnosed: 05/2009
Interest: I have been diagnosed with ALS.
Posts: 162
Madison1943 is on a distinguished road
Default Re: my first attempt at a website about mnd

Very honest story, Chris. And good name too. It is a losing battle. I think I'm losing my life by the inch. Anybody who doesn't realize ALS is killing us must not have the disease or they have a life with such great support it must be like living in a 5-star hotel in Hawaii. I don't have such a place. I'm living it in a 3-story house where I can't climb stairs. So the downstairs powder room is my disabled bathroom. And I have a hit or miss caretaker. It isn't fun and your website doesn't sugarcoat it either. Keep it up.
Carol
Madison1943 is offline  
Old 03-30-2011, 03:17 PM #10 (permalink)
rose's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Anytown
State: Maryland
Country: US
Diagnosed: 7/2008
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 2,893
rose is on a very distinguished roadrose is on a very distinguished road
rose rose is offline
Extremely Helpful Member
rose's Avatar
Join Date: 2008
City: Anytown
State: Maryland
Country: US
Diagnosed: 7/2008
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 2,893
rose is on a very distinguished roadrose is on a very distinguished road
Default Re: my first attempt at a website about mnd

Very nice, down to earth. Well done all the way around
rose is offline  
Old 03-31-2011, 02:06 PM #11 (permalink)
Chris_b's Avatar
New Member
 
Join Date: 2010
City: St helens
State: merseyside, England
Country: UK
Diagnosed: 07/2010
Interest: I have been diagnosed with ALS.
Posts: 87
Chris_b is on a distinguished road
Chris_b Chris_b is offline
New Member
Chris_b's Avatar
Join Date: 2010
City: St helens
State: merseyside, England
Country: UK
Diagnosed: 07/2010
Interest: I have been diagnosed with ALS.
Posts: 87
Chris_b is on a distinguished road
Default Re: my first attempt at a website about mnd

Thanks fo the comments
Chris_b is offline  
Closed Thread

Tags
advice, blog, hope, mnd, website


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Where is the ONE website.... CuriousGirl General Discussion About ALS/MND 2 12-26-2013 10:35 PM
What does arm and leg weakness feel like? An attempt at a definitive answer. bluedog Do I Have ALS? Is This ALS? 15 07-17-2013 05:36 PM
From the ALSAB website: cervus Other 1 09-24-2011 05:14 PM
My Walk For ALS Website BarryG Event Announcements 7 05-08-2011 10:49 PM
My website joelc People With ALS - "PALS" 47 10-29-2009 12:00 AM
Cramps-EMG 2nd attempt? Jules45 Do I Have ALS? Is This ALS? 27 02-06-2009 01:06 PM
New to Website Stauffer General Discussion About PLS 6 03-18-2008 07:56 AM
Understanding this website Mark Suggestions, Problems or Bugs 7 02-14-2007 07:02 PM
ALS Website Theresa2004 General Discussion About ALS/MND 0 01-29-2007 08:32 PM


All times are GMT -5. The time now is 10:31 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016