David_W
Active member
- Joined
- Sep 22, 2010
- Messages
- 34
- Diagnosis
- 10/2007
- Country
- US
- State
- Ohio
- City
- Canal Winchester
Hi, friends-
I just wanted folks to know that I’ve been quiet the last couple weeks, but still present; drawing inspiration, quietly pulling for others, and feeling kinship through our shared journeys.
After three years of gradual decline, I’m suddenly losing my last bit of strength and coordination all at once. It seems like I’ve lost as much function in the past month as I did all last year. Unfortunately, I’m sure far too many of you know first-hand what I’m experiencing.
If my FVC is still high enough, I’ll be getting a PEG tube tomorrow. It should help. I’m also going to get the eye-tracker set-up on my Dynavox. Yea! All the fuss will likely keep me quiet for a few days longer, but hopefully, I’ll soon be adjusting to my newest “normal” and joining-in the threads again!
Say a prayer for me and especially for my family. Meanwhile, I think I’ll start working on another awful poem or two! Hmmm … I wonder what rhymes with PEG-tube? :roll:
God bless,
I just wanted folks to know that I’ve been quiet the last couple weeks, but still present; drawing inspiration, quietly pulling for others, and feeling kinship through our shared journeys.
After three years of gradual decline, I’m suddenly losing my last bit of strength and coordination all at once. It seems like I’ve lost as much function in the past month as I did all last year. Unfortunately, I’m sure far too many of you know first-hand what I’m experiencing.
If my FVC is still high enough, I’ll be getting a PEG tube tomorrow. It should help. I’m also going to get the eye-tracker set-up on my Dynavox. Yea! All the fuss will likely keep me quiet for a few days longer, but hopefully, I’ll soon be adjusting to my newest “normal” and joining-in the threads again!
Say a prayer for me and especially for my family. Meanwhile, I think I’ll start working on another awful poem or two! Hmmm … I wonder what rhymes with PEG-tube? :roll:
God bless,