Ladyinn
Distinguished member
- Joined
- Apr 7, 2010
- Messages
- 398
- Reason
- PALS
- Diagnosis
- 11/2009
- Country
- US
- State
- South Dakota
- City
- Custer
I've read lots of posts of family dynamics changing when ALS strikes in a family. I always considered myself fortunate to have a son who has always been close to me. My husband passed away 4 years ago this week and was sick for two years before that, and my son was a rock in helping with his care. He continued to be there for me until last year when I recieved the ALS diagnosis.
At the same time I met a new man and he has since moved in with me. My son has decided he doesn't want to get to know this man, even tho he has moved in and is my primary caregiver. My son has stopped visiting, doesn't call, and won't let me see my grandchildren. He is my only child. I am so proud of him and am so hurt by his absence from my life.
I am losing more mobility daily and know that this stress and tension is not good for me, but I don't know what to do. He is my only family besides my 85 year old mother who has been in the hospital for 3 weeks and may never get back to her apartment.
I am having a pity party, I guess. Sorry. I'm crying as I type this and now understand that ALS not only wrecks bodies but damages family dynamics. I just didn't "get it" when I read your posts.
At the same time I met a new man and he has since moved in with me. My son has decided he doesn't want to get to know this man, even tho he has moved in and is my primary caregiver. My son has stopped visiting, doesn't call, and won't let me see my grandchildren. He is my only child. I am so proud of him and am so hurt by his absence from my life.
I am losing more mobility daily and know that this stress and tension is not good for me, but I don't know what to do. He is my only family besides my 85 year old mother who has been in the hospital for 3 weeks and may never get back to her apartment.
I am having a pity party, I guess. Sorry. I'm crying as I type this and now understand that ALS not only wrecks bodies but damages family dynamics. I just didn't "get it" when I read your posts.