bratpak
Member
- Joined
- Aug 4, 2006
- Messages
- 12
- Country
- US
- State
- AK
- City
- Anchorage
Hello again everyone,
You are all so helpful and encouraging, I thought I'd post this question to see if any of you have experienced this. In addition to the myriad of symptoms I've had for the last 13 months...Now for the last month or so, my tongue feels like it has tiny cuts all over the tip of it, from the tip to about an inch or so inward, across the entire width of the tongue. This area hurts sort of the way papercuts do and is very sensitive to anything with any spices, even salt. I'm finding it more difficult to say some words (mostly "S" words). When I hold my tongue out and it dries a bit, the sore area looks more red than the rest of my tongue and it appears as if there are indeed tiny splits in my tongue. There is also a bumpy texture, like small peas under the skin. As for the testing, my blood work for myasthenia gravis was negative. So now we've ruled out lupus, MS, rheumatoid arthritis, myasthenia gravis, lyme disease, B12 deficiency, thyroid disease, brain tumors, herniated spinal discs, degenerative disc disease and probably a few others I can't think of at the moment. I'm getting scared that with each "normal" or negative test that I have with continuing symptoms, the more likely an ALS diagnosis is going to be. Have any of you had the types of problems with your tongue like I described? Can you suggest any other tests I should have? Not knowing what's wrong is really getting to me after this long with no answers! Thank you all so much for your support and God bless you. You are wonderfully courageous people and I thank you for being so supportive.
Cyndi
You are all so helpful and encouraging, I thought I'd post this question to see if any of you have experienced this. In addition to the myriad of symptoms I've had for the last 13 months...Now for the last month or so, my tongue feels like it has tiny cuts all over the tip of it, from the tip to about an inch or so inward, across the entire width of the tongue. This area hurts sort of the way papercuts do and is very sensitive to anything with any spices, even salt. I'm finding it more difficult to say some words (mostly "S" words). When I hold my tongue out and it dries a bit, the sore area looks more red than the rest of my tongue and it appears as if there are indeed tiny splits in my tongue. There is also a bumpy texture, like small peas under the skin. As for the testing, my blood work for myasthenia gravis was negative. So now we've ruled out lupus, MS, rheumatoid arthritis, myasthenia gravis, lyme disease, B12 deficiency, thyroid disease, brain tumors, herniated spinal discs, degenerative disc disease and probably a few others I can't think of at the moment. I'm getting scared that with each "normal" or negative test that I have with continuing symptoms, the more likely an ALS diagnosis is going to be. Have any of you had the types of problems with your tongue like I described? Can you suggest any other tests I should have? Not knowing what's wrong is really getting to me after this long with no answers! Thank you all so much for your support and God bless you. You are wonderfully courageous people and I thank you for being so supportive.
Cyndi