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joelc

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The National ALS Registry is Here!
All People with ALS Can Enroll in the Registry TODAY

Dear Friend,

The ALS Association is thrilled to announce that the National ALS Registry is now fully operational! Every single person with ALS across the country can begin enrolling in the Registry today! Just go to www.cdc.gov/als, sign up and join tens of thousands of people with ALS nationwide in adding your name to the fight for a treatment and cure.

Full implementation of the Registry is the culmination of more than six years of advocacy by The ALS Association and advocates across the country who worked with Congress to introduce and enact The ALS Registry Act and secure the funding necessary to move this critical research project forward.

Because of your advocacy, every person with ALS will be counted in the fight against Lou Gehrig’s Disease. Because of your advocacy, the federal government is launching what may become the single largest ALS research project ever created. And because of your advocacy, we are beginning a new era in which the Registry will capture an unprecedented amount of information about the disease that could lead us to discover the cause, treatment and cure for ALS!

However, we need every person with ALS in the United States to enroll in the Registry! Therefore, if you are living with ALS, go to www.cdc.gov/als and enroll today. We also encourage you to share news about the Registry with your support group, friends, email list and everyone else you know with ALS or who may know someone with ALS. Spread the word!

Learn More

The ALS Association has created a special section of our website dedicated specifically to the National ALS Registry. The site, National ALS Registry - The ALS Association, includes instructions on how to enroll, answers to frequently asked questions, brochures and flyers that you can print and share, and much more. People with ALS also can access the Registry directly from the site.

The ALS Association would like to thank every person with ALS and every advocate across the country for helping to make the Registry possible! You truly are making a difference in the fight for a treatment and cure.

If you have any questions about the ALS Registry or would like assistance enrolling, please contact our advocacy department at [email protected].

Thank you!
 
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Too bad it is only for Americans, good stuff though.
 
Thanks Joel, that was quick! I registered and took a few of the surveys.
Barry, maybe a few of us can suggest they broaden the registry to include other nations, the more info about this disease the better!
 
I registered the other day. At least they can start collecting data..hopefully it will help lead to knowledge and ultimately a cure.
 
Registered and took several surveys. This is good stuff.
 
Registered and completed surveys. Good stuff - hope it is used for more than statistics!
 
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