llacort
Member
- Joined
- Aug 16, 2010
- Messages
- 14
- Reason
- CALS
- Diagnosis
- 07/2010
- Country
- US
- State
- NY
- City
- Merrick
Hi Everyone,
My husband, Joe, was diagnosed this past July with ALS. We live in Long Island New York. We went first to Sloan Kettering and than for a second opinion to Columbia Presybeterian and saw Dr. Mitsumoto who we understand is tops in the field. We have been to the center twice so far and have an appointment next month. I want Joey to have the best possible care and am glad Columbia is an option. This morning Joey called me to say he's been thinking and is entertaining the thought to switching to Stony Brook. Now from my understanding, Columbia is funded by the MDA and Stony Brook is funded by ALS. Has anyone switched from Columbia to Stony Brook? If so, what has your experience been. I know there was an article in Newsday last week about a patient Christopher Pendegast who has been living with ALS for 17 years now and he receives his care from Stony Brook. Any information would be greatly appreciated.
My husband, Joe, was diagnosed this past July with ALS. We live in Long Island New York. We went first to Sloan Kettering and than for a second opinion to Columbia Presybeterian and saw Dr. Mitsumoto who we understand is tops in the field. We have been to the center twice so far and have an appointment next month. I want Joey to have the best possible care and am glad Columbia is an option. This morning Joey called me to say he's been thinking and is entertaining the thought to switching to Stony Brook. Now from my understanding, Columbia is funded by the MDA and Stony Brook is funded by ALS. Has anyone switched from Columbia to Stony Brook? If so, what has your experience been. I know there was an article in Newsday last week about a patient Christopher Pendegast who has been living with ALS for 17 years now and he receives his care from Stony Brook. Any information would be greatly appreciated.