TedH5
Very helpful member
- Joined
- May 17, 2010
- Messages
- 1,142
- Reason
- PALS
- Diagnosis
- 08/2010
- Country
- US
- State
- GA
- City
- McDonough
Well I had my first visit to the ALS clinic at Emory U today. First I will just get out of the way the fact that unfortunately Dr. Glass confirmed my diagnosis. What an exhausting day, appt lasted for 6 hours! That being said what a great team of people. They were so helpful, and informative and supportive. Nicole is absolutely amazing! It was definitely emotionally, mentally and physically draining. They talked to me about a couple of diffent trials they would like me to consider, one is the stem cell trial and one is Ceftriaxone. A lot to think about. I obviously do not have to do either but if I so choose I can only do one. They also want me to participate in this bio marker study which I can do concurrent with either of the clinical trials if I decide to do it. I told them I would definitely do the bio marker study and already gave them blood, they also want blood from my parents and I would have to give cerebral fluid a few times a year. Small price to pay to aid in research.
I want to do one of the two clinical trials just not sure which one. I figure even if it does not help me hopefully it will help someone else. I know there are no guarantees and inherent dangers but someone had to be he first person on the moon. There is also a very altruistic appeal to me. I know I am rambling, just so much on my mind and my head is still spinning from everyone my wife and I met and spoke with today.
Thanks for providing me with this forum to come for support and someplace just to express my thoughts. It means a lot to me and you are all amazing people that I admire and appreciate dearly!
Thanks again for listening - Ted
I want to do one of the two clinical trials just not sure which one. I figure even if it does not help me hopefully it will help someone else. I know there are no guarantees and inherent dangers but someone had to be he first person on the moon. There is also a very altruistic appeal to me. I know I am rambling, just so much on my mind and my head is still spinning from everyone my wife and I met and spoke with today.
Thanks for providing me with this forum to come for support and someplace just to express my thoughts. It means a lot to me and you are all amazing people that I admire and appreciate dearly!
Thanks again for listening - Ted