nachiketg
Member
- Joined
- Jul 18, 2010
- Messages
- 18
- Reason
- Learn about ALS
- Country
- IN
- State
- Maharashtra
- City
- Thane
What causes ALS ? Lot of research is going on. There is no specific cause pin-pointed yet.
Genetics, exposure to substances, trauma, toxicity, smoking, medication and what not. All must have been considered by the masters in this field. We know that there is no cure for it, and that implies that specific cause is not completely known.
Usually the research in this field would be based on patient study, animal models and available follow up data of patients at a particular medical establishment.
Has there been an attempt made on this beautiful forum to collect historical data for all friends here living with ALS.?
Not just sharing of experiences, but a standard data collection of related and seemingly unrelated information of those with ALS.
Thousands of ALS sufferers being together here is itself the strength that can't lie unutilized for research.
It was seen that soccer players have unbelievably high incidence of ALS that probably defies statistics.
There has been epidemic like occurrance of ALS in Guam.
There are geographical areas where ALS is multiple fold more common than rest of the world.
If not done before, can we come together to build strong data of past history of ALS PALS here ?
It may be the various drugs we have been taking since childhood, whichever we can remember. (Of course, lot of general population takes paracetamol and dont get ALS. But probably if you have taken plasma transfusion, or some relatively uncommon medicinal substance..?)
Any exposures that are uncommon.
Geographical areas you visited.
Infections you contracted acutely or chronically in the past.
Any trauma since the early age.
Some uncommon event in our lives which sounds insignificant to us may be found common in ALS sufferer's past history. Doctors do take detailed medical history, but its not possible for him to get so called insignificant pieces of information from your entire life.
We have time for that here..
With large number of people contributing with information, it may be compiled and sent to research organizations to find out any unseen comman factors that may direct to the reason of ALS.
Is it possible?
If I make such a template (or even better, any senior member or medical professional makes a template) to be filled by members of this forum, will it be a step towards finding out the unknown?
The template may not necessarily be limited to few options, if member wishes, they may write anything else that is not covered.
Won't it be of great significance if a common thread can be found in most of the ALS patients...?
Just feel that the forum should do such activity. If it's already done, I am sorry to waste your time. I am new to this place and don't know much about it yet..
Genetics, exposure to substances, trauma, toxicity, smoking, medication and what not. All must have been considered by the masters in this field. We know that there is no cure for it, and that implies that specific cause is not completely known.
Usually the research in this field would be based on patient study, animal models and available follow up data of patients at a particular medical establishment.
Has there been an attempt made on this beautiful forum to collect historical data for all friends here living with ALS.?
Not just sharing of experiences, but a standard data collection of related and seemingly unrelated information of those with ALS.
Thousands of ALS sufferers being together here is itself the strength that can't lie unutilized for research.
It was seen that soccer players have unbelievably high incidence of ALS that probably defies statistics.
There has been epidemic like occurrance of ALS in Guam.
There are geographical areas where ALS is multiple fold more common than rest of the world.
If not done before, can we come together to build strong data of past history of ALS PALS here ?
It may be the various drugs we have been taking since childhood, whichever we can remember. (Of course, lot of general population takes paracetamol and dont get ALS. But probably if you have taken plasma transfusion, or some relatively uncommon medicinal substance..?)
Any exposures that are uncommon.
Geographical areas you visited.
Infections you contracted acutely or chronically in the past.
Any trauma since the early age.
Some uncommon event in our lives which sounds insignificant to us may be found common in ALS sufferer's past history. Doctors do take detailed medical history, but its not possible for him to get so called insignificant pieces of information from your entire life.
We have time for that here..
With large number of people contributing with information, it may be compiled and sent to research organizations to find out any unseen comman factors that may direct to the reason of ALS.
Is it possible?
If I make such a template (or even better, any senior member or medical professional makes a template) to be filled by members of this forum, will it be a step towards finding out the unknown?
The template may not necessarily be limited to few options, if member wishes, they may write anything else that is not covered.
Won't it be of great significance if a common thread can be found in most of the ALS patients...?
Just feel that the forum should do such activity. If it's already done, I am sorry to waste your time. I am new to this place and don't know much about it yet..