Old 06-29-2010, 12:25 AM #1 (permalink)
BarryG's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
BarryG BarryG is offline
Extremely Helpful Member
BarryG's Avatar
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
Default Arm weakness

Hello everyone, as most of you know my problems have been mostly bulbar up until the last few months but I have been experiencing increasing arm weakness in the last month or so and an unusual symptom. When I go to do a feed I get ready with the syringe barrel in the peg tube and then when I go to pour the water in for a flush it is all I can do to lift the water bottle high enough to pour it into the syringe. The formula box is the same thing, it is all I can do to lift an 8oz tetrapack box to pour it.

Ok, so I am having arm problems but the strange thing is once I am done pouring the formula in and go to do the water bottle for a flush the water bottle is as light as a feather! It is not just that the bottle is a little lighter, everything feels lighter! I know that my metabolism has always made my energy level be really closely related to my food intake but this is ridiculous. I guess I just need to eat all the time.
BarryG is offline  
Old 06-29-2010, 01:14 AM #2 (permalink)
Miss's Avatar
Very Helpful Member
 
Join Date: 2010
City: Way Down South
State: In the Land of Cotton
Country: US
Diagnosed: 04/2010
Interest: I lost a loved one to ALS/MND.
Posts: 1,760
Miss is on a distinguished road
Miss Miss is offline
Very Helpful Member
Miss's Avatar
Join Date: 2010
City: Way Down South
State: In the Land of Cotton
Country: US
Diagnosed: 04/2010
Interest: I lost a loved one to ALS/MND.
Posts: 1,760
Miss is on a distinguished road
Default Re: Arm weakness

Interesting! I'll start watching my husband to see if I notice an increase in strength after he eats.
Miss is offline  
Old 06-29-2010, 04:51 AM #3 (permalink)
GlenBrittle's Avatar
Very Helpful Member
 
Join Date: 2008
City: Alexandria
State: Ontario
Country: CA
Diagnosed: 10/2008
Interest: I have been diagnosed with ALS.
Posts: 1,540
GlenBrittle is on a distinguished road
GlenBrittle GlenBrittle is offline
Very Helpful Member
GlenBrittle's Avatar
Join Date: 2008
City: Alexandria
State: Ontario
Country: CA
Diagnosed: 10/2008
Interest: I have been diagnosed with ALS.
Posts: 1,540
GlenBrittle is on a distinguished road
Default Re: Arm weakness

Barry,

You are weird.

Then again, so am I.

I have noticed the same symptom. Its like you have to wake up the muscles in my arms and shoulders, wait 5 minutes and then use them. For me, its noticeable when adjusting my butt in the pwc.

Glen
GlenBrittle is offline  
Old 06-29-2010, 10:04 AM #4 (permalink)
abbas child's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to behold
abbas child abbas child is offline
Extremely Helpful Member
abbas child's Avatar
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to behold
Default Re: Arm weakness

Barry and Glen... this is such a weird disease. For me to get enough strength to even sit up in the wheelchair, I have to drink water first thing in the morning. Waking up the muscles... a friend tells me I'm filling my cells with water, lol.

I can't get up in the morning before using the electrical power to raise my head... my head won't lift from the pillow some mornings at all until I'm more upright. The ability to have a few minutes to slowly move makes it a lot easier to help my caregiver get me out of bed.

Moan, moan, groan. smile. Barry, keep on feeding that metabolism!
abbas child is offline  
Old 06-29-2010, 10:43 AM #5 (permalink)
Ladyinn's Avatar
Member
 
Join Date: 2010
City: Custer
State: South Dakota
Country: US
Diagnosed: 11/2009
Interest: I have been diagnosed with ALS.
Posts: 402
Ladyinn is on a distinguished road
Ladyinn Ladyinn is offline
Member
Ladyinn's Avatar
Join Date: 2010
City: Custer
State: South Dakota
Country: US
Diagnosed: 11/2009
Interest: I have been diagnosed with ALS.
Posts: 402
Ladyinn is on a distinguished road
Default Re: Arm weakness

Barry, I know what you mean. My left arm has been paralyzed from shoulder to wrist for a yeeear now, but the right arm is starting to lose strength. I can't lift a glass of icewater before or during a meal but after I have eaten I can!

Like Ann, I have trouble getting out of bed in the morning - torso muscles I suspect are also deteriorating.

I fell in the shower last night and needed help getting up - my arms couldn't hold me to push myself up! This morning I walked out to the deck and fell face down on the ramp -- legs didn't hold me up.

Makes me angry - and that makes things worse. Lots of naps are in order today!

Diane
Ladyinn is offline  
Old 06-29-2010, 12:21 PM #6 (permalink)
rose's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Anytown
State: Maryland
Country: US
Diagnosed: 7/2008
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 2,892
rose is on a very distinguished roadrose is on a very distinguished road
rose rose is offline
Extremely Helpful Member
rose's Avatar
Join Date: 2008
City: Anytown
State: Maryland
Country: US
Diagnosed: 7/2008
Interest: I have been diagnosed with another Motor Neuron Disease.
Posts: 2,892
rose is on a very distinguished roadrose is on a very distinguished road
Default Re: Arm weakness

.. so, maybe the "morning weakness" which I experience, and have asked about here previously, is not only related to having to get the enzymes going to the muscles by moving around (or whatever it is that happens after we've been at rest), its also a matter of metabolism, and eating boosts this?
rose is offline  
Old 06-29-2010, 12:52 PM #7 (permalink)
abbas child's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to behold
abbas child abbas child is offline
Extremely Helpful Member
abbas child's Avatar
Join Date: 2008
City: Eastern Shore
State: Maryland
Country: US
Diagnosed: 07/2007
Interest: I have been diagnosed with ALS.
Posts: 2,182
abbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to beholdabbas child is a splendid one to behold
Default Re: Arm weakness

Speaking only for myself, a glass of water is all it takes to help. However... any evidence that eating is good for us is fine by me! So far, though, I'm not stronger just after eating. In fact, the action of eating wipes me out. Once again, we may be different.

Ladyinn (as you and Rose share the same real name), I am hurting with you. Oh, I really am. Your poor face got it this time. Yes, it is exhausting to get angry... to be avoided if at all possible. Naps are good.
abbas child is offline  
Old 06-29-2010, 01:38 PM #8 (permalink)
BarryG's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
BarryG BarryG is offline
Extremely Helpful Member
BarryG's Avatar
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
Default Re: Arm weakness

Thanks for the replies everyone. Maybe it is just the liquid that I need to get me going, I don't know but as I am totally tubular now it is all liquid. I notice this problem at all times of the day but it is worst for the first feed of the day. Oh well, if I have to get someone to pour my first feed I can live with that. Not the kind of jump start that I dream of but it will have to do!

Dianne, sorry about your shower and deck adventures. I know how it feels to be wobbly and to not have the arm strength to not only protect yourself while falling but to drag yourself back up again.

I agree, more naps.
BarryG is offline  
Old 06-29-2010, 01:42 PM #9 (permalink)
joelc's Avatar
Moderator
Forum Moderator
 
Join Date: 2006
City: Abbotsford
State: BC
Country: CA
Diagnosed: 09/2005
Interest: I have been diagnosed with ALS.
Posts: 2,802
joelc is on a very distinguished road
joelc joelc is offline
Moderator
Forum Moderator

joelc's Avatar
Join Date: 2006
City: Abbotsford
State: BC
Country: CA
Diagnosed: 09/2005
Interest: I have been diagnosed with ALS.
Posts: 2,802
joelc is on a very distinguished road
Default Re: Arm weakness

You guys are bringing back all kinds of past memories. It is hard to adjust to losing those abilities. I have adjusted to not being able to do anything but it took awhile. Nothing about this disease is easy! I sympathize with you!
joelc is offline  
Old 06-29-2010, 01:46 PM #10 (permalink)
BarryG's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
BarryG BarryG is offline
Extremely Helpful Member
BarryG's Avatar
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
Default Re: Arm weakness

Thanks Joel. Are you still eating real food or are you back on the PEG?
BarryG is offline  
Old 06-29-2010, 02:13 PM #11 (permalink)
joelc's Avatar
Moderator
Forum Moderator
 
Join Date: 2006
City: Abbotsford
State: BC
Country: CA
Diagnosed: 09/2005
Interest: I have been diagnosed with ALS.
Posts: 2,802
joelc is on a very distinguished road
joelc joelc is offline
Moderator
Forum Moderator

joelc's Avatar
Join Date: 2006
City: Abbotsford
State: BC
Country: CA
Diagnosed: 09/2005
Interest: I have been diagnosed with ALS.
Posts: 2,802
joelc is on a very distinguished road
Default Re: Arm weakness

On a good day I can still eat a little but my PEG is getting used again after having it for 3 years. The Vita-Mix will be getting a workout from now on. What a marvelous device! Thank Heavens for technology! I am using my NetBook for speech, ventilator for breathing, PEG for food, wheelchair to get around, lift for transfers, etc. etc. Life is good!
joelc is offline  
Old 06-29-2010, 02:44 PM #12 (permalink)
BarryG's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
BarryG BarryG is offline
Extremely Helpful Member
BarryG's Avatar
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
Default Re: Arm weakness

Good stuff Joel! When there is a will there is a way.
BarryG is offline  
Old 06-29-2010, 02:49 PM #13 (permalink)
tomby's Avatar
Member
 
Join Date: 2010
City: Syracuse
State: NY
Country: US
Diagnosed: 09/2009
Interest: I have been diagnosed with ALS.
Posts: 372
tomby is on a distinguished road
tomby tomby is offline
Member
tomby's Avatar
Join Date: 2010
City: Syracuse
State: NY
Country: US
Diagnosed: 09/2009
Interest: I have been diagnosed with ALS.
Posts: 372
tomby is on a distinguished road
Default Re: Arm weakness

Joel -ditto from me Life is good - your posts remind me
tomby is offline  
Old 06-30-2010, 05:30 AM #14 (permalink)
irismarie's Avatar
Very Helpful Member
 
Join Date: 2009
City: valeilles
State: tarn et garonne
Country: FR
Diagnosed: 05/2010
Interest: I have been diagnosed with ALS.
Posts: 1,388
irismarie is an unknown quantity at this point
irismarie irismarie is offline
Very Helpful Member
irismarie's Avatar
Join Date: 2009
City: valeilles
State: tarn et garonne
Country: FR
Diagnosed: 05/2010
Interest: I have been diagnosed with ALS.
Posts: 1,388
irismarie is an unknown quantity at this point
Default Re: Arm weakness

Hey, folk, the answer is THERE. just keep eating and drinking all day long. They DO say to keep our weight up
irismarie is offline  
Old 06-30-2010, 11:53 AM #15 (permalink)
tomby's Avatar
Member
 
Join Date: 2010
City: Syracuse
State: NY
Country: US
Diagnosed: 09/2009
Interest: I have been diagnosed with ALS.
Posts: 372
tomby is on a distinguished road
tomby tomby is offline
Member
tomby's Avatar
Join Date: 2010
City: Syracuse
State: NY
Country: US
Diagnosed: 09/2009
Interest: I have been diagnosed with ALS.
Posts: 372
tomby is on a distinguished road
Default Re: Arm weakness

No calorie is a bad calorie my doctor tells me
tomby is offline  
Closed Thread

Tags
arm, arm weakness, bulbar, food, lift, metabolism, peg, problems, symptom, weakness


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
possible als from one leg weakness? jensmith Do I Have ALS? Is This ALS? 8 02-09-2014 06:59 PM
The Age Old Question: Perceived Weakness Vs. Clinical Weakness max777 Do I Have ALS? Is This ALS? 30 01-31-2014 01:23 PM
No weakness... No ALS jpsteeler99 Do I Have ALS? Is This ALS? 8 01-20-2013 11:03 AM
For The New People: Perceived Weakness and True Weakness notme Do I Have ALS? Is This ALS? 29 11-07-2012 08:02 PM
weakness in body/weakness in neck/mouth edwards5257 Do I Have ALS? Is This ALS? 9 07-18-2012 05:56 AM
weakness? Lavender Lady Do I Have ALS? Is This ALS? 4 07-09-2010 12:34 PM
leg weakness GlennaB General Discussion About ALS/MND 13 12-19-2009 11:39 AM
weakness? katmomma Do I Have ALS? Is This ALS? 10 09-05-2009 10:16 PM
Leg Weakness (I think) fmarino General Discussion About ALS/MND 2 03-13-2008 12:25 PM
Weakness vs "feeling of weakness" ptich General Discussion About ALS/MND 1 08-11-2007 11:58 PM


All times are GMT -5. The time now is 11:23 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016