GlenBrittle
Very helpful member
- Joined
- Oct 9, 2008
- Messages
- 1,540
- Reason
- PALS
- Diagnosis
- 10/2008
- Country
- CA
- State
- Ontario
- City
- Alexandria
Yes , I am still here, and I have been lurking in the shadows ( ok , I was hiding )
To those people that sent me messages, and the inquiries thru Wanda, its time for me to cheer-the-phuck-up. THANK YOU
I have been having a rough time of it lately. I have been into the recesses of my mind (D word which I will not say) and its been hard. I have spoken to many people in the past that are affected by the "D word" and thought I had good understanding of it. Let me tell that shit is hell, it tears you up. I have the best spouse in the world that helps me through these awful feelings.
I have been getting weaker, my left side of my body just follows me around, my left hand has some gripping power , but no dexterity. My right hand is starting now also.
My voice is not worth listening to anymore unless you enjoy saying "huh?", "repeat", "say it again , only slowly."
I have turned into a hermit, preferring to not to have to many people around me <- "D"
My driving is limited to around town, as my braking reaction time is slow and I am losing strength in the legs.
I am still bothered when I think of Beth and her passing.
I can not do standing transfers any more, have been using a transition board to slide from chair to wherever.
I am having the nightmares again - with a twist (cremation)
I am burning Wanda out - I just recently got some respite care for her twice a week, but its not enough.
Trying to make future plans "To vent or not to vent - can we make it work" , without outside help ....
Community Care has their hands tied as far as getting extra help at night
I have progressed to needing a chair with recline and elevated legs
It was heartwarming that so many have asked about me, that I will make an effort to a proper smart ass, embarrassing and pissing people off :twisted:
To those people that sent me messages, and the inquiries thru Wanda, its time for me to cheer-the-phuck-up. THANK YOU
I have been having a rough time of it lately. I have been into the recesses of my mind (D word which I will not say) and its been hard. I have spoken to many people in the past that are affected by the "D word" and thought I had good understanding of it. Let me tell that shit is hell, it tears you up. I have the best spouse in the world that helps me through these awful feelings.
I have been getting weaker, my left side of my body just follows me around, my left hand has some gripping power , but no dexterity. My right hand is starting now also.
My voice is not worth listening to anymore unless you enjoy saying "huh?", "repeat", "say it again , only slowly."
I have turned into a hermit, preferring to not to have to many people around me <- "D"
My driving is limited to around town, as my braking reaction time is slow and I am losing strength in the legs.
I am still bothered when I think of Beth and her passing.
I can not do standing transfers any more, have been using a transition board to slide from chair to wherever.
I am having the nightmares again - with a twist (cremation)
I am burning Wanda out - I just recently got some respite care for her twice a week, but its not enough.
Trying to make future plans "To vent or not to vent - can we make it work" , without outside help ....
Community Care has their hands tied as far as getting extra help at night
I have progressed to needing a chair with recline and elevated legs
It was heartwarming that so many have asked about me, that I will make an effort to a proper smart ass, embarrassing and pissing people off :twisted:
Last edited: