JeffP
Distinguished member
- Joined
- Jan 8, 2010
- Messages
- 295
- Reason
- PALS
- Diagnosis
- 08/2009
- Country
- US
- State
- MI
- City
- Iron Mountain
what an awlful disease this is.it tottally robs the life right out of you .itys been around over 100years and still no cure .i was diagnosed aug09 bulbar i talk like a drunk my speech is so bad.now there talking about a voice machine 8500 dollars .and now a peg tube.there needs to be more awareness of this disease is it because they claim its so rare good guestion.it affects the whole family not just the one with the illness but the loved ones watching us slowly or progressively waste away. its hard to stay positive all the time ,its hard to hold back the tears .life is something that shouldnt be takin for granted you never know what tommorrow brins .another survivor fighting the the fight with all you out there on and not on this forum jeffp