trtt
Member
- Joined
- Dec 29, 2009
- Messages
- 14
- Reason
- Loved one DX
- Diagnosis
- 12/2009
- Country
- US
- State
- Oregon
- City
- Monroe
Hi there, My family was devastated on Dec 22, 2009 with the news that our mother and wife was diagnosed with ALS. My Mom is a young 69 year old, that has been healthy for all of her life. Just a few months ago she started complaining about not having ability to grip items with her hands as she once did, then it all started. She has been through major extensive testing over the last couple of months and has been to see many doctors, ending up with a neurologist and then an ALS specialist in Phx AZ. They are telling us as a family that my mom's test results show evidence for ALS, and that she is in the very beginning stages. She actually is quite well, except for weakness in her hands and arms.
I'm looking to make as many friends in this forum as possible to keep us going forward in a positive way. I would like to ask some questions to hopefully get feed back from you who have the experience and knowledge. I have been researching for days and nights, learning as much as I can about this disease and what can be done.
However, I would like to ask you the people who know.
A. Is detoxing important? Does it work? Does it need to be continued?
B. Did you change your diet to completely eliminate toxins, what do you eat?
C. Is the homeopathic way a good way to go?
D. What supplements have work for you?
E. Do you take the Rilutek Drug and has it worked for you?
F. What level and types of exercising is good to continue?
G. Has anyone out there tried the stem cell therapy?
We had a couple of different doctors give us suggestions with plans to follow and of course prescribe the Rilutek. My mom tried the Rilutek, she had only been taking it a day or two and noticed some side effects. The doctor then told her to stop taking it for now? I wonder what that means? I'm really searching for knowledge...
Any help will be greatly appreciated.
Thanks so much
trtt
F.
I'm looking to make as many friends in this forum as possible to keep us going forward in a positive way. I would like to ask some questions to hopefully get feed back from you who have the experience and knowledge. I have been researching for days and nights, learning as much as I can about this disease and what can be done.
However, I would like to ask you the people who know.
A. Is detoxing important? Does it work? Does it need to be continued?
B. Did you change your diet to completely eliminate toxins, what do you eat?
C. Is the homeopathic way a good way to go?
D. What supplements have work for you?
E. Do you take the Rilutek Drug and has it worked for you?
F. What level and types of exercising is good to continue?
G. Has anyone out there tried the stem cell therapy?
We had a couple of different doctors give us suggestions with plans to follow and of course prescribe the Rilutek. My mom tried the Rilutek, she had only been taking it a day or two and noticed some side effects. The doctor then told her to stop taking it for now? I wonder what that means? I'm really searching for knowledge...
Any help will be greatly appreciated.
Thanks so much
trtt
F.