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maryhahnward

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CALS
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06/2010
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US
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Wilmington
The 5 Stages of Grief and Other Lies That Don't Help Anyone

The stages of grief were developed by Elisabeth Kubler-Ross over 30 years ago, as she listened to and observed people living with terminal diagnoses. Since the publication of her book On Death and Dying, the "stages of grief," as they are known, have become the gauge by which all grief is measured. What began as a way to understand the emotions of the dying became a way to strategize grief: The griever is expected to move through a series of clearly delineated stages, eventually arriving at "acceptance," at which time their "grief work" is complete.

Denial, anger, bargaining, depression, acceptance.

I bet you know what the stages are, even if you don't think of yourself as much of a psychology-type person. The stages are taught in introductory college courses, and were taught back when I was in hospice training. The stages are taught in grief and loss workshops. They come up in pop psychology and in clinical, scientific studies. The stages of grief are everywhere.

This means that many people, even professional psychologists, believe there is a right way and a wrong way to grieve, that there is an orderly and predictable pattern that everyone will go through, and if you don't progress correctly, you are failing at grief. You must move through these stages completely, or you will never heal.

This is a lie.

Death and its aftermath is such a painful and disorienting time. I understand why people -- both the griever and those witnessing grief -- want some kind of road map, a clearly delineated set of steps or stages that will guarantee a successful end to the pain of grief. The truth is, grief is as individual as love: every life, every path, is unique. There is no predictable pattern, and no linear progression. Despite what many "experts" say, there are no stages of grief.

In her later years, Elisabeth Kubler-Ross wrote that she regretted writing the stages the way that she did, that people mistook them as being both linear and universal. Based on what she observed while working with patients given terminal diagnoses, Ms. Ross identified five common experiences, not five required experiences. Her stages, whether applied to the dying or those left living, were meant to normalize and validate what someone might experience in the swirl of insanity that is loss and death and grief.

The stages of grief were not meant to tell you what you feel, what you should feel, and when exactly you should feel it. They were not meant to dictate whether you are doing your grief "correctly" or not. They were meant to normalize a deeply not-normal time. They were meant to give comfort. Ms. Ross' work was meant as a kindness, not a cage.

No matter how much the woman herself regretted the misuse of her stages, they are firmly embedded in our cultural ideas of the right and wrong ways to grieve. The stages are used as a corrective reproach, the process of grief turned into a race: Even the stages themselves are not meant to be lingered in. If someone is identified as being in a stage (especially a messy one, like anger), they need to "get through it" as quickly as possible so they can move on to the end goal of acceptance. Conversely, whatever stage someone is in, they must stay there until they are done, otherwise their grief work will suffer.

For your sake, and the sake of those around you, you must do your grieving fast, do it correctly, and be done.

Except that this isn't how grief goes.

Grief is the natural response when someone you love is torn from your life. It is a natural process: a process of the heart being smashed and broken open, of reality shifting and hurling in place. It cares nothing for order or stages.

The truth is, you can't force an order on pain. You can't make it tidy or predictable. The stages of grief are a net thrown over a fogbank -- they help neither to define nor contain.

To do grief "well" depends solely on individual experience. It means listening to your own reality. It means acknowledging pain and love and loss. It means allowing the truth of these things the space to exist without any artificial tethers or stages or requirements.

There is no set pattern, not for everyone and not even within each person. Each grief is unique, as each love is unique. There are no stages capable of containing all the experiences of love and pain. There are no stages of grief.

If we take away this bedrock, what remains? What do we do without those landmarks?

Here are some things to remember:

• There is no finish line. This is not a race. Grief has its own lifespan, unique to you.

• There is no time when pain and grief are completed; you grieve because you love and love is part of you. Love changes, but does not end.

• What will happen, what can happen, as you allow your grief, is that you will move differently with pain. It shifts and changes: sometimes heavy, sometimes light.

• Anger will happen. So will fear, peace, joy, guilt, confusion, and a range of other things. You will flash back and forth through many feelings, often several of them at once.

• Sometimes you will be tired of grief. You will turn away. And you'll turn back. And you'll turn away. Grief has a rhythm of its own.

• Grief can be absolutely crazy-making. This does not mean you are crazy.

• There is no way to do grief "wrong." It may be painful, but it is never wrong.

Remember that there is no "closure." Grief is part of love, and love evolves. Even acceptance is not final: It continuously shifts and changes.

The truth is, you will seize up in the face of pain and soften into it, again and again, both things in rapid succession, and both things with silence in between. You'll find ways to live inside your grief, and in doing so, it will find its own right place.

Your love, and your grief, are bigger than any stage could ever be. The only way to contain it is to let it be free.

As Ms. Ross said in the last days of her life, "I am more than these five stages. And so are you."

Megan Devine
 
Mary so interesting you have posted this today.

I have started participating in a 6 week phone counselling group for carers after MND. This week was week 2 and the topic was - the 5 stages of grief. Now contrary to that article it was clearly stated to us that these are not linear and overlap and come and go. But they were presented to us as the topic for us to discuss our experience against.

I was the only one who said - well I didn't experience most of them so far, but I can note some stages my grief has gone through instead.

1. Relief
2. Numbness
3. Haunting by what was said as a result of FTD
4. Fear of loss of control of my life, particularly financial
5. PTSD
6. Intense feeling of the loss of the man I loved.
Please note these are not strictly linear and definitely overlap, tho I no longer experience points 1-3.

What I said was totally accepted, I just find it so interesting that you have posted this just now. Thanks for sharing.

Today would have been our 4th wedding anniversary. I worked all day in the classroom with a wonderful bunch of people, and the first lady who opened her iPad up popped a facebook post about MND because someone had posted it to her as it is MND awareness week in Australia. I don't normally discuss my private life in the classroom but it did start the day with a short discussion on MND and at least they knew why Chris's old iPad which I take to classes has the rugged case when I threw it onto the table to demonstrate that it works ;)

Then raced home and in to the cinemas with some past and present CALS or family of PALS to see the movie 'You're not you' as part of a fundraiser for MND NSW.

Huge tear jerker movie and I was so glad to sit beside a dear past CALS whose husband passed 7 months ago.

We NEVER 'get over it', but we do find a way to redefine ourselves and keep living. But the CALS experience and the loss become a part of who we are now. That's more than 'acceptance'.
 
Oh Tillie. I just want to give you a big hug. Today IS your 4th wedding anniversary...may many happy memories of time spent with your beloved Chris make you smile today.
God Bless, Janelle x
 
Tillie and Mary- wow! Thank you so much for these thoughts,. So much truth in all of it. Tillie, thought it was especially honest and courageous to say "relief!" As the days pass for me and I read the pain (physical and emotional) expressed in this forum, Know Joe gave me a gift by flying away BEFORE life became unbearably hard for both of us. As much as I grieve his loss and daily miss his presence in my life, I am grateful that this didn't linger any longer. Watching him suffer and become increasingly frustrated by the loss each day brought was so painful. Thank you both for different perspectives. Hugs. Donna
 
Thank you for posting this. I imagine grief is grief. However, my loss is so different than my children's loss.

One year ago today my sweet Rick had his first brush with death as he had respiratory and heart failure. This was one of the worse days of my life and God in His glorious and merciful wisdom knew that exact fact as He gave us 10 additional months together, albeit I'll be honest in saying it was a very difficult 10 months. However, the precious blessings we received in those 10 month by far outweighed the difficult times. Since then, it's been two months and four days since Rick's passing and the grieving process has been has been all over the place so this post could not have come at a better time. Thank you and I thank God for using you as His instrument to let me read the words He knew I would need to take in today. That being said, my heart goes out to our children as I'm trying to relate to the loss of a Dad. Fortunately, I still have both my parents and I'm grateful. I appreciate your post as I forward it to them and leave it in God's hands your words resonate with them.

Thank you...
 
>Tillie and Mary- wow! Thank you so much for these thoughts

Ditto that!
 
Its funny. Someone asked me how my son was doing and I said I think he is already grieving for his dad . They said it wasnt possible because steve is still alive but juliens counselor agrees.
 
>but juliens counselor agrees

me 2
 
The 5 stages everyone talks about are but a small sample of the things people go through in grief. And it's not linear, you jump from one to another and back again, sometimes they hit all at once. But it is possible to get through grief, if not get over the loss. In my experience there is no closure, you learn how to limp.
Vincent
 
But it is possible to get through grief, if not get over the loss. In my experience there is no closure, you learn how to limp.
Vincent

So true, I am getting through it, I've got quite a limp too!

Donna as it was Autumn when Chris passed, each day especially mornings became steadily colder and in those early months I would get out of bed each day, feel the cold and just think, oh this winter would have been so cruel to him ... and the relief would just hit me. Not so much relief that it was over for me, but relief for him that he had hit the worst, he was not going to get any worse. The last month of his life had been particularly awful and I know that he had crossed the line in what was acceptable to be QOL for him.

Indeed we start grieving on the day of diagnosis.
OMG I just typed that, and then looked back at the 5 stages and realised I went through all of those stages in the first couple of months after diagnosis, but not after his death! Seriously that has just been a little mini epiphany for me.
 
I cried so much and really started grieving 5 months before Steve was diagnosed. My sister and I figured it out so the news was not a surprise for me when Steve heard it. I feel like grief is so different in each situation. I don't think you ever stop grieving you simply learn how to survive and incorporate it into your life and go on. The first months of diagnosis were a time of deep sadness and despair but I have made my peace with it. My son and Steve have not. Unfortunately, by far, I have had the most practice with death.....and yes often what you feel is relief. Relief your loved one isn't suffering any longer and relief you don't have to have your heart ripped out witnessing it.
 
I'm very pleased that I posted this article. I've not "lost" my husband yet so I didn't want to offend. Then again I feel the losing of him every minute of every day.

Long time, back in the last century...1993, he became very ill with encephalitis. After rigorous treatment for months and months he came out of the fog with permanent cognitive deficits. He has been disabled since then. I felt so many losses but didn't know how to describe my feelings. I couldn't find the proper context for them. I came across an article on grieving and realized that was what I was experiencing. He wasn't so much as I. He almost didn't know his old self but I missed that guy who was no more and the life we had before "it" happened, and the dreams we shared as a couple for ourselves and our family. I waded through my grief alone as most people didn't get it, sometimes I felt like I was drowning, and then I managed to figure things out. I know for sure I didn't follow prescribed stages of grief; I was, at times, a mushy mess of many emotions. When I got a gripe on myself I felt so fortunate that I wasn't grieving his death and we could rebuild our lives just using a different pathway.

Now this, this unwanted, unwelcome ALS has become our reality, my new grief. I like the permission the author of this article gives to grieve as we see fit and never mind every one else's opinions.
 
Me too, Mary. I hope everyone else "gets it".
 
Thanks Mary, we all go thru so many emotions and I think it's important to go with the "flow" so to speak.. Yes we all grieve differently .
Hugs to you, you both have been thru so much already.
Love Gem
 
Mary and TIllie give us wise words.

I my mind, the 5 stages of grief are a helpful guide that lets us understand behavior, but they are certainly not prescriptive. I don't even think Kubler-Ross's research was particularly rigorous. But it is helpful.

For what it's worth, and with some trepidation, I'll describe my own grief process.

A) When it became clear that my dad had lost his memory to dementia, I was sad for a few days. My relationship with him, I realized, would never be what I hoped, because he couldn't remember my childhood.

Then I realized that I was now responsible to him to watch over my mother. I cried while giving his eulogy. Then I buckled down and tended to my mom until she died. Frankly, I didn't like her, so I don't miss her.

B) When my PALS (my wife) got her diagnosis, I was confused for a moment, then realized my job was to ensure her comfort until her death, and my other job was to lead our kids through the same process.

So I was busy, determined, and on a mission. I was a little sad, but mainly I was concerned for her comfort. When she died, I still had a mission; I needed to raise good kids. That's just the way I was raised, and the way the military trained me for 20 years. It's who I am.

Every night, I think sadly that she had to die so young, but I get over it, think of the future, and get to sleep. I also worry about my kids and their possible deaths (in our case, the ALS is genetic). I'm sad, but mainly I'm determined and on a mission to raise happy kids.

So I never "grieved" like I'm supposed to. Meds keep me from being angry. This is the life I chose and I'm doing it the best I can. I've learned to live day by day and do my best moment to moment.

I admit I don't emphasize well (I never have; it's my own character defect), so I keep most of of my comments here on the technical side rather than trying to give comfort. I'm just not good at it.

So that's my input. I think we all handle this disease differently. In the 5 years I've been on this website, I've seen the stress of ALS break up families, I've seen couples split up, I've seen lovers turn to haters. I've also experienced that ALS gives us the opportunity to prove what we're made of.

Some of our PALS and CALS have inspired me. And I'm proud to be a member of this community.

--Mike
 
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