Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,459
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
I did not want to put this in DIHALS nor does it belong in newly diagnosed so here it sits. I do not need opinion or information but support and prayers.
My story for those who do not know it. FALS family gene positive. Recent leg weakness Followed by twitching. Neuro exam borderline normal. Today EMG abnormal with all the criteria for ALS in one muscle abnormal but not rising to the level of the first in the adjoining muscle. Because it is only localized they will not call it yet. If it weren't for the FALS it would not be as serious but I am supposed to now find a neuro ( this was study neuro) and start the process
Pray for me
My story for those who do not know it. FALS family gene positive. Recent leg weakness Followed by twitching. Neuro exam borderline normal. Today EMG abnormal with all the criteria for ALS in one muscle abnormal but not rising to the level of the first in the adjoining muscle. Because it is only localized they will not call it yet. If it weren't for the FALS it would not be as serious but I am supposed to now find a neuro ( this was study neuro) and start the process
Pray for me
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