Since there has been a propensity of negative remarks about DIHALS peppered in several threads lately, here are my thoughts. I am not posting this to create division or controversy, but merely to reflect another point of view.
If DIHALS are annoying & irritating, don't open or contribute to the threads. Moderators are doing their best to corral the questioners into the appropriate sub forum and merging threads as warranted. Regular users may have noted that several relentless and repetitive DIHALS threads have been closed and in a few cases, the member shut down. ( after a warning or two).
Please keep in mind, these DIHALS people (& guests) do read other threads, including those in which we complain about them... I have been guilty of being unkind as well, but I will try to curtail unsavory posts going forward. If you wish to discuss DIHALS - please do so by way of private messaging.
If we think about it, it's a bit like a PALS reading rants & raves posted by a CALS from time to time... Some of those threads may make a PALS feel bad. Personally, the latter threads don't irritate or annoy me because firstly, I have accepted the irrefutable fact that my husband & family have it far harder than I have. For new PALS, one might imagine just how difficult some of those comments may be to read... Many CALS thread sadden me. Other CALS threads irritate me when repetitive in query and content. BUT, largely, I learn from from the CALS here and I have learned from many of the DIHALS here too. In all honesty, I have also forged friendships with several DIHALS. I believe there is room for everyone here.
My point is - this place is, or ought to be, an inclusive support forum. From understanding MND, to spreading awareness, to diagnosis to in memorium. And everything in between and beyond.
All I'm trying to say is that it can be just as hurtful to a DIHALS to read less than flattering remarks about them, as it is to a PALS reading things about others like them.
Just sayin'.