all: wow, so much commentary on a simple message . . . .
glupavomomiche, I don't use private messaging to avoid 'insider' issues that could possibly develop. I asked you about Shawnamarie Weatherford because I learned of their existence due to posts apparently made by you. I wondered if your screen name were native american, but found the remarks I posted from a google internet search . . . id est . . . search your screen name using google, that is what will show up . . . it isn't what I thought of, its what I found. I wondered if you knew . . . but more importantly I wondered if it is native american? I had tried to find Shawnamarie Weatherford on facebook (there was some information there once), et alia, hoping to learn of their experiences with the pacer but it appears that despite suffering from ALS, Shawnamarie Weatherford has been completely hounded off the internet. Regarding your involvement in ALS, many patient's have care providers and sometimes the patient's data shows up under the care providers account. People who use these web sites usually are quite open about their medical problem even though I recommend that they refrain from disclosing personal identity information. I asked because I had a follow up question, id est . . . what your opinion of the pacer might be . . . .
TedH5, I am not calling anyone out, I am wondering what happened to Shawnamarie Weatherford. glupavomomiche said Shawnamarie Weatherford was their friend, so I thought they would know. The pacer is an active research issue . . . at present it is the only 'treatment' with a level of FDA approval, virtually all patients offering favorable reports of their personal experience and scientific data that suggests it helps. The only other such treatment that I know of is riluzole but patients find its benefits imperceptible. In my experience, its a very common question on these forums whether a member is a patient or a care provider . . . you are the first I have ever encountered to suggest that such a question is untoward. Quite often, such as at this moment, the "Do I have ALS? Is this ALS?" is the most popular forum of this site.
sadiemae, I don't think Shawnamarie Weatherford placed that page there. Copyright law is often misunderstood . . . though I am not at all aware of the particulars of this case, there are very big cases under active litigation. I can only suggest that you avail only your own material on the web unless you have the approval of the material's exclusive rights holder.
Toto's Dorothy, I try to be more sensitive members of disadvantaged groups. Does "D I H A L S" mean 'don't I hate amyotrophic lateral sclerosis?' and why do you think I am a 'he?'
. . . as previously indicated, its not my translation.
brooksea, ibid TedH5 and . . . some people don't know whether they do or they don't.
kiwisally, I answer your question later in this post . . .
ruthiep, ibid kiwisally and . . . I think my post was significantly misunderstood.
Danijela, While it is surprising what little people know about copyright law, what if there was no scam: what has happened to Shawnamarie Weatherford?
hjlindley, thank you so much for this news, did you notice whether Shawnamarie Weatherford has a care provider; when I was able to find some information about them, I could help but feel that they were on their own with this disease . . . can you imagine that?
PLEASE DON'T BELIEVE EVERYTHING YOU FIND ON THE INTERNET!
ruthiep, kiwisally . . . more than ten years ago I began advocating the use of the pacer in patients who have ALS (when everybody said it wouldn't work) . . . it has since become a research issue that is approved by the U. S. FDA. Another of my observations was recently affirmed by Scientific American and Nature magazines - I understand these journals to be quite reputable. As near as I can tell, the pacer has an excellent, near perfect reputation. I am very interested in any remarks by any person regarding this treatment in relation to ALS. I am a graduate student with advance standing in computer science and physics, in want of a Ph.D..
I hope I have clarified any misunderstandings that unfortunately developed.
If there are any further questions, I will be happy to respond to them.