LOYAL130418
New member
- Joined
- May 14, 2018
- Messages
- 5
- Reason
- PALS
- Diagnosis
- 01/2018
- Country
- VIE
- State
- Hpg
- City
- 18000
Hi everyone, I truly hope all the best to all of you and families.
First sorry for my bad English
I have the beginning symptoms of ALS about 6 months before , and diagnosed with ALS 1 months ago by EMG when I visited my neurologist (UMN and LMN he said). My scores ALSFRS-R is 46, only right hand/ arm weakness and a little atrophy…. now have a feeling something strange with right foot.
In 3 recent days, in the afternoon time I always have a heavy seizure (or ‘heavy cramp’ I dont what is in English ) in whole my body (something like Epileptic seizure or Malaria or suddenly get serious cold) within about 15 minutes and get fever ~39oC afterward, and stop within 2-3 hours
https://en.wikipedia.org/wiki/Malaria
https://en.wikipedia.org/wiki/Epileptic_seizure
My health is not good as 3-4 weeks ago when I still do few short runs
What is disease for this sympthoms ? anyone ever hear about this ??
Hopefully to hear comments, thank you very much for your help.
Michael
First sorry for my bad English
I have the beginning symptoms of ALS about 6 months before , and diagnosed with ALS 1 months ago by EMG when I visited my neurologist (UMN and LMN he said). My scores ALSFRS-R is 46, only right hand/ arm weakness and a little atrophy…. now have a feeling something strange with right foot.
In 3 recent days, in the afternoon time I always have a heavy seizure (or ‘heavy cramp’ I dont what is in English ) in whole my body (something like Epileptic seizure or Malaria or suddenly get serious cold) within about 15 minutes and get fever ~39oC afterward, and stop within 2-3 hours
https://en.wikipedia.org/wiki/Malaria
https://en.wikipedia.org/wiki/Epileptic_seizure
My health is not good as 3-4 weeks ago when I still do few short runs
What is disease for this sympthoms ? anyone ever hear about this ??
Hopefully to hear comments, thank you very much for your help.
Michael