Hudson
Member
- Joined
- Jun 21, 2017
- Messages
- 10
- Reason
- PALS
- Diagnosis
- 02/2018
- Country
- US
- State
- New York
- City
- New York City
I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have ALS.
Unfortunately, by the end of January 2018, my weaknesses had progressed noticeably. My speech was harder to understand; swallowing was more challenging; my right hand and arm were much weaker; my left arm was weaker; other muscle weakness was noticeable; and I no longer run or do the workouts I used to, although I can still walk.
My neurologist changed my diagnosis to ALS in February. I've begun taking Riluzole, Radicava and Neudexta. My symptoms first surfaced in the second half of 2016, so the doctor has suggested that my progression has been relatively slow.
I wanted to thank everyone for their generous advice and to express my appreciation for this amazing forum.
Unfortunately, by the end of January 2018, my weaknesses had progressed noticeably. My speech was harder to understand; swallowing was more challenging; my right hand and arm were much weaker; my left arm was weaker; other muscle weakness was noticeable; and I no longer run or do the workouts I used to, although I can still walk.
My neurologist changed my diagnosis to ALS in February. I've begun taking Riluzole, Radicava and Neudexta. My symptoms first surfaced in the second half of 2016, so the doctor has suggested that my progression has been relatively slow.
I wanted to thank everyone for their generous advice and to express my appreciation for this amazing forum.
