IgorZilio
Active member
- Joined
- Jan 10, 2017
- Messages
- 51
- Reason
- PALS
- Diagnosis
- 05/2018
- Country
- BR
- State
- RJ
- City
- Rio de Janeiro
Hey guys, I’m 25 years old, brazilian and live in Rio de Janeiro so, sorry if there are some english problems. About a year and a half ago I had a really weird viral infection that evolved to pericarditis and a bunch of other stuff, but I made a full recovery. A few months after, however, I started feeling some spasms and cramps but kind of ignored it. But it started to spread and in a few more months felt fasciculations pretty much everywhere, all the time, then I went to see a neurologist. So in june of last year I had an EMG and NCS, that only showed fasciculation potentials and had a possible diagnosis of BFS. Kept going to the neuro to see if there were any changes, but everything seemed ok, no apparent atrophy just a bit of strenght loss in my left hand and arm, but in the past four months I started having some difficulties to like lift a pan full of water out of the stove with my left arm and had to make much more effort to open a bottle of water with my hands for example. I then had another EMG and NCS last week and it was really bad. I translated the report:
“We found signs of denervation, represented by positive sharp waves and fasciculations, in muscles of the four members and in lumbar and cervical paravertebral musculature. The recruitment during maximum effort was incomplete in the muscles of the four extremities (decrease in functioning motor units), with high amplitude (10 to 15 Mvolts) and increased duration potentials (“giant motor unit potentials”), indicating an old reinnervation process (axonal return).
In the presence of these findings and a normal NCS, we must conclude that this is a disease compromising lower motor neurons of the four extremities, without suggestive alterations of bulbar involvement, at the moment.
Impression: Second motor neuron (LMN) disease, affecting the four extremities.”
I scheduled an appointment with my neuro 2 weeks from now and then I’ll see what she has to say, but I wanted to talk to people who’ve gone through what I’m going through right now. I’m actually really, really scared, don’t know if this is ALS, or an initial form of ALS, but I’m trying to stay positive. Do you have some advice on how to cope with all of this? It’s been a real shock.
Thank you!
“We found signs of denervation, represented by positive sharp waves and fasciculations, in muscles of the four members and in lumbar and cervical paravertebral musculature. The recruitment during maximum effort was incomplete in the muscles of the four extremities (decrease in functioning motor units), with high amplitude (10 to 15 Mvolts) and increased duration potentials (“giant motor unit potentials”), indicating an old reinnervation process (axonal return).
In the presence of these findings and a normal NCS, we must conclude that this is a disease compromising lower motor neurons of the four extremities, without suggestive alterations of bulbar involvement, at the moment.
Impression: Second motor neuron (LMN) disease, affecting the four extremities.”
I scheduled an appointment with my neuro 2 weeks from now and then I’ll see what she has to say, but I wanted to talk to people who’ve gone through what I’m going through right now. I’m actually really, really scared, don’t know if this is ALS, or an initial form of ALS, but I’m trying to stay positive. Do you have some advice on how to cope with all of this? It’s been a real shock.
Thank you!
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