Old 01-12-2018, 11:26 PM #1 (permalink)
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Default Progression.... ?

I was diagnosed Thanksgiving 2017.

Most problem with balance and gait. Walking with rollator walker. They say the problem began in hips. I have great difficulty rolling over or getting out of bed without pulling myself up with a rail! Once I pull myself to sitting position, I can use rail to stand and use walker. I weigh 285 pounds and don't want to hurt my wife's back pulling me up!

We have order a hospital bed, since new sleep number bed didn't solve problem!

I know everyone progresses at different rates, I have started home infusion of Radicava and hope to maintain some ability to get up and go to bathroom in middle of night.

I was interested in others experiences...

Also trying to be discrete, but my genitals have shrunk making urination messy. I didn't know that muscle was affected.

I'd like to stay with some independence as long as possible.

Thanks for any help
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Old 01-12-2018, 11:31 PM #2 (permalink)
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Default Re: Progression.... ?

Ah, well, welcome... But ALS doesn't shrink your 'nads, so I'd certainly take that up with your doctor!
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Old 01-12-2018, 11:39 PM #3 (permalink)
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Default Re: Progression.... ?

Not "nads" P....s

Maybe because of staining to stand....
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Old 01-12-2018, 11:53 PM #4 (permalink)
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Default Re: Progression.... ?

I knew what ya meant, lad!

The answer stands (no pun intended!), tho
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