Smith2026
Active member
- Joined
- Jan 18, 2017
- Messages
- 35
- Reason
- Loved one DX
- Diagnosis
- 11/2016
- Country
- CA
- State
- Saskatchewan
- City
- Estevan
Recently my dad was told by neurologist that he was 95 percent sure it was als but had to rule out the other causes since there is no als test. Well had blood work and Mri all came back good. He had a two hour testing of other tests where they tested muscles and reflexes. This was back in November 2016, we are still awaiting our visit back to neurologist.
Now here is the story, back in 2012 we had notice his right foot not working properly and he was tripping a lot. He was told drop foot. Skip forward to 2013 I had noticed that his calf looked so small and had a pale white colour but my dad was content with his doctor telling him it was drop foot.
In 2014 I noticed his right right was getting weak but just assumed of age and because he never exercises just has an office job and plays on a computer. He continued to stumble a lot and eventually se got him a cane. The next strange thing I had noticed was he couldn't lift his arm up over his head and couldn't grab a mil container unless he used both hands.
I finally attended one of his doctors appointments where I asked if it could have been a stroke. Ct scan was done and all was clear and with that I asked for some physio therapy so we could try and build up at right side. He got really fatigued from it, so back to the doctor where I told him how tired he was and how weak he felt, and I had noticed his voice sounding strange not to mention that this cough had also shown up, with this white phelgm.
He now uses a walker, out of breath from walking, having trouble getting out of chairs, constantly scratching or rubbing his nose, dry skin every where. I forgot to mention he lost 25 pounds. I also have noticed the left arm atrophying as well.
I am thinking the diagnosis is more than likely correct but is that cough, voice change, rubbing and scratching his face and oh I forgot blowing his nose constantly while and after eating mean his diaphragm and facial muscle are affected now? So many questions with no answers. Please help, thanks so much.
I will say that when I was the caregiver for my mom (lung cancer) the cancer clinic was just a phone call away, and we don't have any resources or support here.
Now here is the story, back in 2012 we had notice his right foot not working properly and he was tripping a lot. He was told drop foot. Skip forward to 2013 I had noticed that his calf looked so small and had a pale white colour but my dad was content with his doctor telling him it was drop foot.
In 2014 I noticed his right right was getting weak but just assumed of age and because he never exercises just has an office job and plays on a computer. He continued to stumble a lot and eventually se got him a cane. The next strange thing I had noticed was he couldn't lift his arm up over his head and couldn't grab a mil container unless he used both hands.
I finally attended one of his doctors appointments where I asked if it could have been a stroke. Ct scan was done and all was clear and with that I asked for some physio therapy so we could try and build up at right side. He got really fatigued from it, so back to the doctor where I told him how tired he was and how weak he felt, and I had noticed his voice sounding strange not to mention that this cough had also shown up, with this white phelgm.
He now uses a walker, out of breath from walking, having trouble getting out of chairs, constantly scratching or rubbing his nose, dry skin every where. I forgot to mention he lost 25 pounds. I also have noticed the left arm atrophying as well.
I am thinking the diagnosis is more than likely correct but is that cough, voice change, rubbing and scratching his face and oh I forgot blowing his nose constantly while and after eating mean his diaphragm and facial muscle are affected now? So many questions with no answers. Please help, thanks so much.
I will say that when I was the caregiver for my mom (lung cancer) the cancer clinic was just a phone call away, and we don't have any resources or support here.
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