Elephantmom73
New member
- Joined
- Jan 8, 2017
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- Oklahoma
- City
- Fort Gibson
My brother, who I adore and love very much has just been diagnosed last month with ALS. Though I had strong suspicions, it was still crushing to hear it as official. I am simply devisated. Devistated for him, devistated for his wife and kids, devisated for our parents, and least of my concerns, devistated for me. I bounce back and forth between hurt and anger over this.
My husband gets mad at me for saying this, but it seems as though it would be less of a tragedy if it were happening to me. My brother is such a good man. I can't ever recall him ever saying or doing anything mean to another human being. He is a hard worker, loyal husband, wonderful father, as well as the best son and brother one could hope to have. I feel blessed to have him in my life.
I am having trouble getting a handle on this. It seems as though it's progressing so quickly. In May he was fine....Then gradually there were signs something was amiss. As of today, he can barely walk, has very little use of one arm/hand, and the other is following suit. I can't imagine never seeing his contagious smile, and or hearing his voice. I just want to make the most of the time he has. I feel like I can literally hear his clock ticking, and the sound of it is killing me.
Of course, when I am with him, I am as upbeat as I can be. Last thing I want to do is give him cause to worry about me. I obsess over what I/we can do to make life more manageable for him. I'm constantly researching on all things ALS....Which I suppose is normal. I just feel helpless and it's as if I think I'm going to find the cure on Google....Which I realize it futile. At least with cancer, your are handed a pair of boxing gloves in hopes of winning the fight. But this.....There is no hope. Just surrender.
It's so painful to watch, and I can only attempt to imagine what it must be like for him. Just wish I could do something!!!
My husband gets mad at me for saying this, but it seems as though it would be less of a tragedy if it were happening to me. My brother is such a good man. I can't ever recall him ever saying or doing anything mean to another human being. He is a hard worker, loyal husband, wonderful father, as well as the best son and brother one could hope to have. I feel blessed to have him in my life.
I am having trouble getting a handle on this. It seems as though it's progressing so quickly. In May he was fine....Then gradually there were signs something was amiss. As of today, he can barely walk, has very little use of one arm/hand, and the other is following suit. I can't imagine never seeing his contagious smile, and or hearing his voice. I just want to make the most of the time he has. I feel like I can literally hear his clock ticking, and the sound of it is killing me.
Of course, when I am with him, I am as upbeat as I can be. Last thing I want to do is give him cause to worry about me. I obsess over what I/we can do to make life more manageable for him. I'm constantly researching on all things ALS....Which I suppose is normal. I just feel helpless and it's as if I think I'm going to find the cure on Google....Which I realize it futile. At least with cancer, your are handed a pair of boxing gloves in hopes of winning the fight. But this.....There is no hope. Just surrender.
It's so painful to watch, and I can only attempt to imagine what it must be like for him. Just wish I could do something!!!
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