kellykago
Active member
- Joined
- Feb 11, 2012
- Messages
- 63
- Reason
- PALS
- Diagnosis
- 12/2016
- Country
- US
- State
- CA
- City
- Fairfield
I've been experiencing slurred speech for about a year. In Mar I saw a neurologist and in April I had a speech eval and emg that were normal. In July my neuro saw tongue fasciculation and ordered genetic testing, which showed variant on ALS2 gene. In august I repeated the speech and was diagnosed with dysarthria and dysphagia and tongue fasciculation. Last week I had my second EMG that showed something in my tongue region. I was re-evaluated by neuro yesterday and after her review of all my tests and hyper reflexes on exam, she diagnosed me with possible ALS. She told me she will see me again in three months to evaluate any progression. She said my progression is very slow, in her opinion.
I think I am numb or in a sort of denial, as I don't have a lot of emotion about it all yet. Maybe it's the "possible" in the diagnosis.
I think I am numb or in a sort of denial, as I don't have a lot of emotion about it all yet. Maybe it's the "possible" in the diagnosis.