LizF
Active member
- Joined
- Jun 16, 2016
- Messages
- 64
- Reason
- PALS
- Diagnosis
- 06/2016
- Country
- CA
- State
- BC
- City
- Victoria
Hello,
I was dx with ALS last week, after much testing and an earlier diagnosis of polymyositis. I have been told my case is atypical. My first symptom was leg weakness, which began in thighs before becoming distal, and with a dx of polymyositis had been on a run of Prednisone, on which I showed some improvement but am now weaning off after a muscle biopsy indicated ALS and not a myositis. In addition to the weakness, I now have muscle twitching (worse when anxious). Weakness and twitching are confined to legs, and I can still walk easily with a cane, and manage stairs with a handle or railing. There is increased weakness in one foot, but no Babinski's sign.
This decline has taken about a year. I have zero upper body symptoms/weakness.
Without detailing the extensive testing I've had, I am confident, though devastated, that this is the correct dx, and am now trying to find acceptance. I am wondering if anyone has a like story?
Thank you
I was dx with ALS last week, after much testing and an earlier diagnosis of polymyositis. I have been told my case is atypical. My first symptom was leg weakness, which began in thighs before becoming distal, and with a dx of polymyositis had been on a run of Prednisone, on which I showed some improvement but am now weaning off after a muscle biopsy indicated ALS and not a myositis. In addition to the weakness, I now have muscle twitching (worse when anxious). Weakness and twitching are confined to legs, and I can still walk easily with a cane, and manage stairs with a handle or railing. There is increased weakness in one foot, but no Babinski's sign.
This decline has taken about a year. I have zero upper body symptoms/weakness.
Without detailing the extensive testing I've had, I am confident, though devastated, that this is the correct dx, and am now trying to find acceptance. I am wondering if anyone has a like story?
Thank you