carex
Active member
- Joined
- Mar 12, 2016
- Messages
- 48
- Reason
- PALS
- Diagnosis
- 10/2015
- Country
- Us
- State
- FL
- City
- Melbourne
Howdy y'all. Bob here.
Started slurring just about a year ago. At first we thought it was a side effect to the diabetic medication I was taking. Two of them had been identified as doing such. We tried varring the dosages, stopped some, then others. The slure only got progressively worse.y
By fall, after the usual battery of test, my neurologists gave me the bad news, sent me off to Univ of Miami for a second opinion/confirmation. Bulbar Onset.
We returned from a New England Christmas with a cold. Two nights later, I was in the local hospital with breathing issues for the week. As I was scheduled for a VA evaluation later in January, they had me come to Tampa immediately. After a week's eval they scheduled me for a G-tube the following Monday, but let me out on a weekend pass. On Monday I returned with a case of pneumonia. The G-tube was cancelled for 10/14days until I recovered from the pneumonia. After which they installed the tube and life went on. I spent the entire month in a hospital.
Been on the tube for several weeks now and aside from severely mississing food... It's become away of life. Damn restaurant TV commercials don't help any either.
My primary gripe these days... is trying to get a grip on the proper dosage of (2MG tab) (Robinul). Up to eight 2MG tabs are allowable per day. Currently... I'm at three times. Sometimes it works... Sometimes not. Press on regardless. At it's worst it's like having a mouth full of slime that's difficult to swallow. Thanx for the suction unit, but no sooner is my mouth evacuated and the unit turned off... Another mouthful of heavy saliva, just that quickly. Jeez!
Anyway... That's my story and I'm stickin' to it. Y'all take care.
Bob
Started slurring just about a year ago. At first we thought it was a side effect to the diabetic medication I was taking. Two of them had been identified as doing such. We tried varring the dosages, stopped some, then others. The slure only got progressively worse.y
By fall, after the usual battery of test, my neurologists gave me the bad news, sent me off to Univ of Miami for a second opinion/confirmation. Bulbar Onset.
We returned from a New England Christmas with a cold. Two nights later, I was in the local hospital with breathing issues for the week. As I was scheduled for a VA evaluation later in January, they had me come to Tampa immediately. After a week's eval they scheduled me for a G-tube the following Monday, but let me out on a weekend pass. On Monday I returned with a case of pneumonia. The G-tube was cancelled for 10/14days until I recovered from the pneumonia. After which they installed the tube and life went on. I spent the entire month in a hospital.
Been on the tube for several weeks now and aside from severely mississing food... It's become away of life. Damn restaurant TV commercials don't help any either.
My primary gripe these days... is trying to get a grip on the proper dosage of (2MG tab) (Robinul). Up to eight 2MG tabs are allowable per day. Currently... I'm at three times. Sometimes it works... Sometimes not. Press on regardless. At it's worst it's like having a mouth full of slime that's difficult to swallow. Thanx for the suction unit, but no sooner is my mouth evacuated and the unit turned off... Another mouthful of heavy saliva, just that quickly. Jeez!
Anyway... That's my story and I'm stickin' to it. Y'all take care.
Bob