KrisTie H.
Member
- Joined
- Jan 8, 2016
- Messages
- 15
- Reason
- CALS
- Diagnosis
- 01/2016
- Country
- US
- State
- Utah
- City
- Taylorsville
Hi My name is Kristie. my husband has not been positively diagnosed yet but everything I read and see on him and in him say's ALS. He has had symptom's for about 2 1/2 yrs but the Dr's never seemed to concerned. M.S, pinched nerve in neck, pinched nerve in back, stroke, old injury, I'm so scared. We met on line 8 yrs ago and he moved to Utah from Missouri to be with me. The premise for our whole relationship is "We will Never Be Alone Again". Now I'm faced with not only being alone but losing my best friend. And even worse watching him die slowly.
I don't know where to start even he is convinced it is something else but the dread inside of me say's ALS. And just in the time since the nero said " I think it's MND" he has gone down hill the use of his left hand is almost nothing now and he is dragging his leg to almost not picking it up at all and his balance is just so much worse. Even his work place has started questioning him about his symptoms and diagnosis. They have never said anything or asked anything in 2 years. It's so much more noticeable to everyone.
Trying to get him in to the University of Utah ALS clinic everything I've read has said get him into a clinic ASAP.
I see time slipping away and everyone calling the shot's seem to be in no hurry.
please help. I feel like I'm all alone.
Thank you for your time.
I don't know where to start even he is convinced it is something else but the dread inside of me say's ALS. And just in the time since the nero said " I think it's MND" he has gone down hill the use of his left hand is almost nothing now and he is dragging his leg to almost not picking it up at all and his balance is just so much worse. Even his work place has started questioning him about his symptoms and diagnosis. They have never said anything or asked anything in 2 years. It's so much more noticeable to everyone.
Trying to get him in to the University of Utah ALS clinic everything I've read has said get him into a clinic ASAP.
I see time slipping away and everyone calling the shot's seem to be in no hurry.
please help. I feel like I'm all alone.
Thank you for your time.