Gotty
Active member
- Joined
- Nov 24, 2015
- Messages
- 33
- Reason
- PALS
- Diagnosis
- 11/2015
- Country
- CA
- State
- ON - Ontario
- City
- Toronto
Hello everyone,
About 6 months ago I came upon this site and was blown away by the outpouring of warmth, friendliness, support and wealth of information. You are all wonderful, sharing your stories and experiences for scared 'kids' like me! Thanks to the founders and contributors for this great space!
I thought someday I might be back and here I am. Newly and finally diagnosed today. It took a bit over 3 years, starting with spasticity in my left leg. I am still mobile, using a 'walker', and glad to have the balance after a wobbly use of a cane and many falls for the last year.
Anyway, here I am and wondering so many things...
Top of mind is how my family will cope. Luckly (or sadly) I don't have children, though my dogs are a close second. I have a partner and a few sibs all of whom are close. While I have been planting seeds to this direction, my sibs are non accepting and keep 'googling' to find and offer-up other things I may have. My partner doesn't think anything needs to change and won't think of short/long term realities. Any ideas on how to make my sibs stop and my partner wakeup?
My second top of mind is my job. I am the primary earner and we have debt. Quite affraid and ignorant on how to manage this one. I am still working but with a 2-hour daily commute in stop-and-go traffic, I am finding it quite exhausting. Especially using a clutch! Does anyone actually disclose ALS to their employer, or do you just keep going until you can't anymore. (Just thinking you should have a limit to characters, as it seems I am going on and on...)
Anyway, it's nice to meet you all and thanks for listening.
Gotty
About 6 months ago I came upon this site and was blown away by the outpouring of warmth, friendliness, support and wealth of information. You are all wonderful, sharing your stories and experiences for scared 'kids' like me! Thanks to the founders and contributors for this great space!
I thought someday I might be back and here I am. Newly and finally diagnosed today. It took a bit over 3 years, starting with spasticity in my left leg. I am still mobile, using a 'walker', and glad to have the balance after a wobbly use of a cane and many falls for the last year.
Anyway, here I am and wondering so many things...
Top of mind is how my family will cope. Luckly (or sadly) I don't have children, though my dogs are a close second. I have a partner and a few sibs all of whom are close. While I have been planting seeds to this direction, my sibs are non accepting and keep 'googling' to find and offer-up other things I may have. My partner doesn't think anything needs to change and won't think of short/long term realities. Any ideas on how to make my sibs stop and my partner wakeup?
My second top of mind is my job. I am the primary earner and we have debt. Quite affraid and ignorant on how to manage this one. I am still working but with a 2-hour daily commute in stop-and-go traffic, I am finding it quite exhausting. Especially using a clutch! Does anyone actually disclose ALS to their employer, or do you just keep going until you can't anymore. (Just thinking you should have a limit to characters, as it seems I am going on and on...)
Anyway, it's nice to meet you all and thanks for listening.
Gotty