ccraig1771
Member
- Joined
- Oct 5, 2015
- Messages
- 19
- Reason
- CALS
- Diagnosis
- 09/2015
- Country
- US
- State
- CA
- City
- Eureka
Hello, I have just joined this forum because my 64 year old mother was just diagnosed two weeks ago with ALS. She was given less than 6 months. I am sure that it is strange for some to hear that she is just being diagnosed yet be so advanced in the disease. Let me explain. My mother is extremely stubborn and I believe that she has been hiding symptoms from me and the rest of the family. A year ago she began slurring her speech and shortly after developed drop foot. (Although I have noticed a slight limp for a few years) Fast forward to a month ago she told me that she hadn't been able to eat or drink in three days because she couldn't swallow. After a long hospital stay and many, many negative tests her neurologists tells us the bad news. She has lived with me a month now. In that month she was hospitalized again and a Peg Tube done. She eats almost exclusively through the tube. She chokes on mostly everything else. She is completely paralyzed in her left leg, however can still walk with a walker, but it is painful to watch. She has most of the use of her arms. I really don't know if I should be giving this much information but I am scared and don't know what to do. Hospice has already been called per suggestion from her doctor. It is so difficult watching her decline so fast. She has always been so strong. I just don't know what to do.