dougieconnor
Active member
- Joined
- Sep 2, 2015
- Messages
- 39
- Reason
- PALS
- Diagnosis
- 08/2015
- Country
- Uk
- State
- East Lothian, Scotland
- City
- Haddington
I'm seeing specialist next week for a full diagnosis but I do have als/MND and it's more likely bulbar palsy. A year ago I noticed slurred speech, maybe 2 months later I had severe Choking {laryngospasm} I now have really bad speech, muscles in Upper arms and chest are twitching like f*ck. My breathing is bad when I'm walking but mainly OK when at rest. I have a lot of saliva but I can swallow that OK. Phlegm is a big problem for me, either choking or distorting my speech. I'm due to stop working in a week, so life on benefits from now on.
I've suffered depression for most of my life, but the strange thing is I'm happy now. I'm living each day as best as I can. I'm currently on holiday in lanzarote it's been hard and scary at times but I'm not letting a diagnosis stop me living the best I can. I use humour a lot when people ask what's wrong.
I live in Scotland near Edinburgh. If anyone wants to chat about this feel free xxx
I've suffered depression for most of my life, but the strange thing is I'm happy now. I'm living each day as best as I can. I'm currently on holiday in lanzarote it's been hard and scary at times but I'm not letting a diagnosis stop me living the best I can. I use humour a lot when people ask what's wrong.
I live in Scotland near Edinburgh. If anyone wants to chat about this feel free xxx