bear1973
Distinguished member
- Joined
- Mar 12, 2015
- Messages
- 129
- Reason
- PALS
- Diagnosis
- 05/2015
- Country
- CA
- State
- Ontario
- City
- Barrie
Hello all,
So glad this forum exists.
I started noticing a weaker left leg about a year and a half ago - thought nothing of it. Last Feb. I was on vacation in Florida and walked everywhere, felt fine. Last May, walked about 2 km's to pick up my car and noticed a limp - then realized I couldn't stand on my toes anymore. Since then - from May 2014 to know, left leg has become progressively weaker although can still walk, just with a limp. Leg is very tired after walking a 500m. Had an MRI done last fall which showed a bulging disc - it was thought that a nerve was being pinched. But saw a neurologist today who did testing on my left leg, right leg, and left arm. Neuro said the muscles were definitely not working right on left leg, were better on right leg although still not working right, and in left arm there was some disturbance as well. Electro testing (...forget name of the test) and also "listened" to the muscles amplified - forgot the name of this test as well.
Having said that he ruled out MS (no vision/bowel problems) and said was ALS. In shock now. 41 years old. I just don't know what to think - he said I have about 20 years give or take although really didn't know.
Very anxious and depressed now. Trying not to think of my future although hard not to. Do you guys think a second opinion is needed? He spent about 90 min. with me and was first appointment.
Any feedback appreciated. Thanks.
So glad this forum exists.
I started noticing a weaker left leg about a year and a half ago - thought nothing of it. Last Feb. I was on vacation in Florida and walked everywhere, felt fine. Last May, walked about 2 km's to pick up my car and noticed a limp - then realized I couldn't stand on my toes anymore. Since then - from May 2014 to know, left leg has become progressively weaker although can still walk, just with a limp. Leg is very tired after walking a 500m. Had an MRI done last fall which showed a bulging disc - it was thought that a nerve was being pinched. But saw a neurologist today who did testing on my left leg, right leg, and left arm. Neuro said the muscles were definitely not working right on left leg, were better on right leg although still not working right, and in left arm there was some disturbance as well. Electro testing (...forget name of the test) and also "listened" to the muscles amplified - forgot the name of this test as well.
Having said that he ruled out MS (no vision/bowel problems) and said was ALS. In shock now. 41 years old. I just don't know what to think - he said I have about 20 years give or take although really didn't know.
Very anxious and depressed now. Trying not to think of my future although hard not to. Do you guys think a second opinion is needed? He spent about 90 min. with me and was first appointment.
Any feedback appreciated. Thanks.