anderkling
Distinguished member
- Joined
- Dec 1, 2014
- Messages
- 273
- Reason
- PALS
- Diagnosis
- 01/2015
- Country
- CA
- State
- B.C.
- City
- Surrey
My name is Charlene. Yesterday I received my diagnosis of ALS. I had written on this forum in November, concerned about symptoms of leg weakness, tripping and falling. Some of you wrote back with words of encouragement and promises of prayer. Thank you.
My GP referred me to two neurologists. I have seen three, two of whom are ALS specialists. I have had all the tests, EMG, MRI, CT, etc. I'm just reeling, and can hardly fathom the news. Sometimes I think I'm falling apart. Two months ago I was an active 58 year old teacher, working full-time and managing a home. I am married with two teenaged children. I live in Canada, just north of the Washington State border in British Columbia. I asked my neurologist to test for Lyme, and he gave me the Elisa test, which I understand is not very reliable. I'm thinking of pursuing a more thorough test, perhaps in the US. I know it's probably a long shot, and unlikely. Does anyone have ideas about this? My condition has deteriorated significantly in the past month and I can barely walk. I just got a liver test to see if I can go on Riluzole/Rilutek.
My GP referred me to two neurologists. I have seen three, two of whom are ALS specialists. I have had all the tests, EMG, MRI, CT, etc. I'm just reeling, and can hardly fathom the news. Sometimes I think I'm falling apart. Two months ago I was an active 58 year old teacher, working full-time and managing a home. I am married with two teenaged children. I live in Canada, just north of the Washington State border in British Columbia. I asked my neurologist to test for Lyme, and he gave me the Elisa test, which I understand is not very reliable. I'm thinking of pursuing a more thorough test, perhaps in the US. I know it's probably a long shot, and unlikely. Does anyone have ideas about this? My condition has deteriorated significantly in the past month and I can barely walk. I just got a liver test to see if I can go on Riluzole/Rilutek.