Sunvista
Active member
- Joined
- Sep 28, 2014
- Messages
- 55
- Reason
- PALS
- Diagnosis
- 09/2014
- Country
- US
- State
- Virginia
- City
- Virginia Beach
I was just diagnosed with bulbar onset ALS at Johns Hopkins. So far I have mostly slurred speech but I can feel my swallowing starting to change. I'm 63, retired and with good health insurance. I had a job where I traveled the world, and have lived a great and adventurous life. I am not interested in a life where I can't sail, ski, white-water etc.
I am terrified of suffocation and have no desire to eat from a tube. My wife and daughter can't stop crying but I'm okay with it as I suspected six months ago something very bad was happening to me. Am I giving up too soon? When the time comes is there a good way to give up? I mean non-violently!
I am terrified of suffocation and have no desire to eat from a tube. My wife and daughter can't stop crying but I'm okay with it as I suspected six months ago something very bad was happening to me. Am I giving up too soon? When the time comes is there a good way to give up? I mean non-violently!